Expectations vs. Reality

It hit me today, between stress about money and trying to keep Sam’s excitement to a dull roar, that we’re coming up on five months with the twins; they’re three months adjusted as of last Wednesday. That’s nearly half a year, comfortably out of the “fourth trimester” and rapidly moving towards the baby stage I like the best, which is the 6-12 month stage (when they’re independent enough to play by themselves and sometimes hold a bottle, but still small and cute).

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(this is Sam in that bracket, and my GOD, what a cute kid)

Twin-wise, things are good. They’re healthy babies, they’re happy babies. Isaac is needing all sorts of interventions and what-have-you, but it’s nothing that’s going to affect him long term, at least not as far as anyone has guessed yet. They both smile and laugh, they both eat heartily and sleep through the night.

So I found myself thinking, in retrospect, how is early twin parenthood different from what I expected? And thus I give you:

EXPECTATIONS VS. REALITY: THE FOURTH TRIMESTER WITH TWINS EDITION

EXPECTATION: Feeding them will be a nightmare. I’ll have to get bottles that allow for hands-free feeding because otherwise, things will be utter chaos, always.

REALITY: Well, I mean. Things are utter chaos…

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…but the better strategy here is to just stagger feedings by about half an hour or so.

It also helps that being in the NICU kind of got them prepared for a feeding schedule right from the get-go. With Sam, we were just reaching a feeding schedule around the three month mark, but these two have been strictly on a schedule since they came home, and it’s made things significantly easier. We know exactly when they need to eat and how much, and as a result, we’re almost never baffled by their crying for any reason. It’s always either, “I am hungry and my mealtime is fast approaching” or “I have pooped and you can smell it three counties away” or “I am falling asleep and keep dropping my pacifier, please replace it for me.”

The hardest part of it all is deciding who eats first. On some level, I like to take a “squeaky wheel gets the grease” approach, but that inevitably ends with the one who wasn’t loud before suddenly being inconsolable not thirty seconds after I start feeding the first. And there’s nothing I can do! That’s the weirdest part: when you have twins, you have to get used to one of them screaming their head off and not doing anything about it because a lot of times, you CAN’T do anything about it. If the bottle is in Carrie’s mouth and Isaac starts yelling because he accidentally batted his Wubbanub away, welp, tough titties, Isaac. And even when it’s a legitimate need, you sometimes just have to shrug and say, “I want to help you, but I’m in the middle of helping your sibling.”

Speaking of…

EXPECTATION: The twins, being newborns, will be really hard. Sam will be a helper and/or self-entertaining.

REALITY: HAHAHAHAHAHA!

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Oh, that’s a good one.

The twins are, comparatively, easy. They’re not wholly self-entertaining, obviously–tummy time is a thing, and they get bored with their dangly toys–but for the most part, I can plop them somewhere if I have to do something and then go do it and not worry about being interrupted.

Sam, on the other hand, is understandably more needy since acquiring siblings. Oh, he loves them, don’t get me wrong. He thinks they’re great, and they think he’s great. Both twins laughed for the first time at something Sam did, which is just going to go down in family lore forever.

But Sam is, of course, jealous and desperately in need of assurance that Kyle and I still love him at all times, but specifically when we are attending to the babies’ needs.

The scene usually plays out like this: Kyle or I are feeding one baby; the other is fussing or screaming, maybe both. Sam approaches, leans on our legs, starts shoving toys in our face and begging us to play with him. Or Sam backflips over the arm of the couch, we yell at him not to do that (unable to take him to his room, as we typically would have, because we’re feeding a baby), and then he says he wants Tostitos or pretzels or Frosted Mini Wheats (my son’s diet is 99% beige, and it should be better, but I’m barely treading water here, folks). Or we hear a yell from the bathroom that he’s done pooping and needs his butt wiped or that he’s still pooping and needs his Kindle.

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It’s understandable, of course. It’s a difficult adjustment, and even before the twins arrived, he’s never been much of an independent kid. Capable of independence, absolutely, but he vastly prefers to play with us or other kids rather than playing by himself.

And, well, it’s hard. I find myself relieved that he starts kindergarten next fall, so he’ll be in school full time and around other kids his age who can play with him during the day, relieved both for his sake and mine. In the meantime, there’s still a year to go, and we can’t really afford preschool that’s more than the two days a week he has right now (and even that’s stretching our budget really thin).

SPEAKING OF!

EXPECTATION: We will be totally broke all the time.

REALITY: Yeah, basically.

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This was sort of the case with Sam as well, mostly after we moved from our apartment to our house. The mortgage, though a good $300 less than it would’ve been to get an apartment the size we needed, was $300 more than we were paying for the apartment we were in. Sam was a formula baby (as are these two), and we added things like water bills and garbage collection to our monthly debits. As a result, when Sam was about 13 months old, I got a job, and a year later, I got a better job. Even with the cost of his daycare tuition, Kyle and I made enough between us that money was almost never an issue, and we were able to live comfortably, with dinners out on weekends and even the odd trip to Disney World.

And now we’re back here again. I knew I’d have to leave my job when I had the twins, simply because daycare for a baby is just too expensive, never mind for two babies, and even with discounts. We did the math, and even if we’d pulled Sam out of the daycare he attends (and loves) and went to one of the least expensive places in the state, we’d still be out $400 a week more than I’d be making, so the idea of me working any time before the twins are in school is just not feasible.

The trouble is that now, we’re down my income, and the bills haven’t gone away. Kyle makes more than he did back in 2015, but most pay periods feel like we’re racing against an invisible enemy to make ends meet. Unexpected expenses have us panicking and using credit cards in the last days of the pay period, and he and I are sure Sam’s picked up on our stress over the whole thing (we haven’t hidden it very well).

We both know it will get better in about a year. Next May, we finish with the more expensive car payments, and the twins will switch to cows’ milk. Next September, Sam starts kindergarten in our local school district. All told, that will free up about $1100/month for us.

BUT in the meantime, we rely on the kindness of our families and friends and shop for nonperishables at Walmart.

And shopping-wise…

EXPECTATION: Until the twins are old enough to dress themselves and choose their own clothes, I’m just going to dress them alike ALL THE TIME. They will be adorable in boy-girl matching outfits, maybe even adorable enough for an Instagram channel that’s ONLY ABOUT THEM.

REALITY: Listen, do you know how rare it is to find outfits that match for baby girls and baby boys?

I’m serious! It’s ridiculous. I’m not even talking about outfits that look like clones of each other, only one is pink and the other is blue or something. I just mean things that are thematically similar, because I guess baby girls can’t love sharks and baby boys can’t love birds?

I have occasional good luck with Carter’s; usually about once a season, they have a couple of outfits that match enough for me to want them very badly. The most recent set were in the three month size, and they had dinosaurs on them, because I guess dinosaurs transcend gender. But other than that, matching outfits are so ridiculously rare, and the ones you do find end up being so expensive that you wonder if the person selling them has ever met a real parent, one who recognizes that her twins may very well grow out of these clothes in a week.

Like they did for the three month clothes.

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(I guess that’s why they call it growing like a weed)

VERY fortunately, I’ve been blessed with dear friends and grandmas who heard the call of the “I can’t afford clothes for my babies” bird and delivered in BOXES with adorable clothes, some of them matching nicely! And I do find the occasional matching outfits, even if they just match thematically.

BUT. I wish there were more, or even just that I could afford the ridiculously pricey ones.

(though I’ll admit that if I could afford the pricey ones, I’d probably use that money on a crib or an exersaucer instead and just keep the babies in their generic white onesies)

But then there’s this weird point…

EXPECTATION: After having two babies, I’m so done. No more babies for me. Nope. Never again.

REALITY: Well…….

I’m not pregnant. Thank GOD for that, because I couldn’t handle one-year-olds and a baby and Sam all at once. But the doneness I felt when I was pregnant has kind of faded, at least partly because even as twins, these two are just such easy babies. They love being held, but it doesn’t ruin things if they’re put down. They eat well, and aside from some reflux issues and constipation issues, are good with that. They smile readily and learn fast. They’re ridiculously cute.

And I love the baby stage. I really do. And what’s more, I don’t feel done. I feel like I’d be okay with being done, but if I had my druthers, I’d ruther eventually do PGS testing on our remaining embryos and transfer another girl to give us a round four kids. I’ll be fine, I think, if that never happens, but…

Well. It’s very different having babies when you’re not dealing with postpartum depression than otherwise. I’m a whole new level of exhausted, but I’m loving it, and I feel like I could do it again, someday.

Just, yanno. Not any SOON someday.

Evaluation

When I was a kid, I mean really young, my younger sister got to have occupational therapy. I say “got to have” because her therapy seemed so cool to me as it helped her work through the tactile defensiveness that would later prove to be a symptom of autism. She’d do things like play with shaving cream and eat popsicles and all the stuff that, to a five-year-old like tiny me, seems like the best thing ever. Now, of course, because she was tactile defensive, she hated all of that, but I was so jealous that she got to do these things and it was called “school.”

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(I think I did this once? in school? It must’ve been third grade because my third grade teacher was amazing)

And it all came through Early Intervention, a program for infants and toddlers who either have developmental delays or are at risk for having developmental delays, with the aim to reduce or remove those delays. And I’m thinking about it quite a lot because Isaac has officially qualified for Early Intervention, as of today.

He is developmentally delayed, meaning that he’s failing to hit a handful of milestones, all thanks to his torticollis. Apparently the doctor we saw about a month ago, who seemed entirely useless, actually referred us to Early Intervention, and after some telephone tag, I scheduled an evaluation for Isaac for this afternoon. The idea was to see if he qualified to receive their services and, if so, what services he should receive. And, as it turns out, he does.

His delays aren’t cognitive or social, which is a huge relief to me–not that motor delays are fantastic, but at least we know that whatever caused his torticollis hasn’t negatively impacted his cognitive and social development much. The ladies who came to evaluate him–all some version of a Platonic Form of “mom”–all fell in love with him the second he smiled (and I can’t really blame them; he’s got the best gummy little grin. They both do, really).

The evaluation was mostly playing with him to see how much he could turn his head, if he would move and interact with stimuli, if he’d interact with people, things like that. Like Sam before him, he’s infinitely more interested in people’s faces than in objects, no matter the object in question. One of the evaluators and I had to hide our faces during some of the testing because he kept ignoring the toy he was supposed to focus on to smile at us.

His trouble comes entirely in his movement, and that’s what we expected to hear. His torticollis isn’t absolutely impossible to fix–he’s able to get his head to turn to face forward briefly, at least, which is good–but it’s bad enough that we definitely qualify for assistance in that regard. In the meantime, we have exercises we’re supposed to do with him to stretch out his neck. With any luck, between those and the helmet, he’ll be doing well enough in a few months that this–like the NICU–will all be backstory.

The helmets are pretty much a given for both twins, even though Carrie doesn’t have the torticollis as obviously or as badly as Isaac (the EI people said that they’d do a free evaluation of her if we wanted, which I may take them up on, but not until we’re in a more settled pattern with them–probably next month). I’m trying to keep reminding myself not to feel guilty about the things they’re delayed on and the flatness because those delays and the flatness are both byproducts of their prematurity and their twin gestation. Still, it’s hard when you read “your four-month-old should be able to roll over” and your four-month-old is mostly just doing mini-pushups when you give them tummy time.

Still, their social development helps me to focus on the good, even when the physical development lags behind. They’re both absolutely delightful. Isaac has developed a fantastic giggle that comes out whenever we change his shirt for the day for some reason, and I may have changed his shirt multiple times a day just to catch that giggle in action. Carrie is still just a sunshiney girl overall, and they’re progressing well. Both on the curve, both hopefully ready to graduate to real people formula and save us some dollars in the process.

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(how to buy formula when you have twins, illustrated)

The dollars are a stressful thing because our budget right now leaves us basically no wiggle room, even with as many things cut out as we can (i.e., in the year of our Lord 2018, it is not practical to cut out internet or wireless, and while I’d love to downgrade our cable, we’re in the middle of a contract, and doing so would cost more immediately than it’s really worth). This particular pay period is tight because we had a surprise antivirus autorenewal (Kyle had been talking to me about when we could renew that subscription, only to find out that it had renewed itself! Surprise!), the cat needed a trip to the vet that cost more than the $75 I usually expect (because she’d inexplicably grown troll claws that embedded themselves in her paw pads and so we needed to have her claws clipped while we were there, which seems simple enough, until you factor in the antibiotics she got afterwards), and our water bill was due. Without these unexpected expenses, we can do our budget really well and get along with slightly tightened belts. With the surprises, things get… tense.

I remind myself constantly that we’ll be in a much better place by this time next year. We’ll have paid off the car with the larger payments, and the twins will be off formula and onto cows’ milk. Our tax return should look really good: we’ve added two dependents, and I quit my job, which is a significant decrease in income since last year. In September (or August, school years are weird now), Sam will be starting kindergarten, which means no more preschool tuition (I love his preschool, but I’ll be glad to stop paying that every week). When all is said and done, we’ll have an extra $800/month by next summer and an extra $1100/month by next December.

Which is very comforting, but it doesn’t help right now, when I’m more than a little on edge because the twins went through a growth spurt, and now the 3 month clothes I expected to last them the summer are all too small.

Sigh. Money is dumb. But we’ll make it, I’m sure. We’ll be stressed out and poor and exhausted, but we’ll make it.

And in the meantime, early intervention is free, no copays even, so that’s pretty nice.

But it’s not all bad news

I realized after I made my last post that I probably give off the impression that I either hate being a mom or hate having twins or both or am just living in a special circle of hell designed for those of us whose thought process when applying for college was “which school will get me married off the fastest?”

(if anyone was wondering, my alma mater was NOT that school… at least not for me, though not for lack of trying)

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(and trying… and trying… )

But either way, that’s not true. There’s this weird thing that happens when you’re truly doing something you love, where it drives you crazy, where you’re at your wits’ end, where you reach the end of every day and just want to collapse like someone has stolen all of your bones…

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…but you love it.

And I do love it. I love the weight of the babies in my arms and the weight of Sam leaning against me. I love how they have their unique ways of sitting: Carrie like a little ball of squishy love, Isaac resisting all comfort but reaching for it at the same time, Sam luxuriating like a pampered cat. All unique ways of cuddling with me, which is something they all seek at various times: me. Just me. Warts and thorns and all.

(I don’t have any warts or thorns, but I do have a cyst named Clarence)

Last night, Sam woke up around 12:45 a.m. to use the bathroom and called for Kyle, and when Kyle slept through that (as he is wont to do; he could sleep through WWIII happening in our bathroom, I swear), I came up and fetched Sam and brought him downstairs with me. He was skittish about being alone in his room for reasons known only to him (no new media lately, no changes to his normal routine except that there was a holiday this week, nobody coming or going, probably just a run-of-the-mill bad dream or need to be near Mommy), and I was too tired and too busy with babies to try and negotiate him back upstairs.

So downstairs he stayed, initially sleeping on the chair but eventually shuffling over to sit with me and a recently-fed Isaac on the couch. I knew that he wouldn’t sleep while I was up and while the babies were fussing, so I didn’t try to make him. Instead, I just quietly talked to him while Isaac sat on my lap, wide-eyed, and participated as babies do. I was, admittedly, frustrated at Sam being downstairs somewhat–it’s easy to calm his fears and help him relax when the babies are asleep, but notsomuch when they’re awake and hungry–but at the same time, I was glad for that time. He was sleepy enough that his usual boundless energy had settled to the dull roar of bedtime, and he just wanted to quietly lean on me and watch cooking videos on my phone.

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I’ve missed those quiet moments with him; they used to be far more common, but now, I just snatch them when I can, when he’s quiet and at peace and happy. Like this afternoon, when he was overtired and whining, so we just sat on the couch and watched videos of people carving soap (look, don’t ask me why, it’s just really relaxing) and tornadoes (again, don’t ask me). The babies fussed from time to time, but Sam and I just sat there and talked about the soap and the tornadoes. He talked about how he likes soaps that have two colors, like blue and white or purple and pink, and how tornadoes are big and scary but cool. It felt like connecting with him, just talking and being on his level. My little boy.

The babies, too, are growing into that wanting to be with me. Lately, they’ve started fussing if they’re in their rock-n-plays and I’m out of line of sight, which is both flattering and frustrating. Flattering because it’s great to know that your mere presence eases someone’s troubled mind; frustrating because, dear sweet children, Mommy does have to pee sometimes.

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They’ve started smiling for reasons beyond “I have been tickled,” and that’s been pretty rewarding, too. Isaac is the readier smiler of the two–no matter what mood he’s in when things start, just seeing someone or getting his Wubbanub or being patted gets the biggest toothless gummy grin out of him. Carrie, on the other hand, needs a little coaxing. You have to talk sweet to her and remind her that yes, she is a beautiful girl (“the beautifullest” as Sam says, usually in a death metal screech: “OHHH THE BEAUTIFULLEST!” as he pets her head) and she’s a funny girl and you love her very much. Then her entire face goes sunshiney sweet, and she sticks out her tongue in happiness.

They’re a little behind, but not as much as they could be. I admit that any delays they have–although completely understandable, considering the circumstances, send me into a spiral of impostor syndrome.

For the uninitiated, impostor syndrome is when your brain basically tells you that you’re not as good as people think you are, that your successes and happiness are unearned. It’s really common in successful creative people–authors, actors, artists, musicians, that sort of thing. You get it in your head after one off-handed comment or dressing down that no, you’re not really as good as people seem to think you are, that any day now, they’re going to find out that you’re faking it, and then you’ll lose all the happiness you think you have, and then where will you be?

It’s how I end up sabotaging myself in whatever job I work (“I don’t really deserve this job/the praise I’m getting for this job, and it’s only a matter of time before they find out” …and then cut to me being so anxious about this imaginary situation that I actually end up messing up and it becomes a self-fulfilling prophecy), and it’s how I often feel about being a mom. I hear a lot of “you’re amazing! You’re a great parent! You’re kicking ass!” and I want to believe it, but then the impostor syndrome shows up and says, “Hey, by the way, the twins aren’t picking up their heads and chests yet, both of them have flattish heads, Sam acts out all the time, your house is a mess, you need a nap every morning, and this is all because you’re actually a TERRIBLE MOTHER.”

The most I can do is try not to listen to it, try and tell that voice to shut up. That the twins are delayed because they’re not actually almost 4 months old but closer to two-and-a-half months old. That their heads are flat because of all sorts of reasons, none of which are me. That Sam acts out because he’s adjusting to this new life, that it can take a while. That it’s okay for the house to be a mess, as long as it’s mess and not filth. That I have infant twins, for crying out loud, and even when they’re being good (like they are tonight; Carrie needed 2 oz at around 11:30, but they’re otherwise sleeping peacefully), they’re a lot of work.

I tell myself all of those things, and eventually, I hope I’ll believe them. That’s the best I can do; that and do everything in my power to make sure my kids are happy, healthy, and kind.

In the meantime. The twins are getting bigger and bigger, and I love it. They were such little peanuts when they came home, absolutely drowning in newborn size clothes. Now they’re on the cusp of switching from 3 month to 6 month clothes because they’re both on the curve, growth-wise. As of last weigh-ins, they were at 5th and 7th percentile (Isaac and Carrie, respectively) for their actual ages, not their adjusted ages, and that’s awesome. With any luck, being on the curve will translate to us getting to stop the expensive formula and move on to formula that’s even slightly more affordable and comes in larger canisters.

And we’ve learned that Sam is slowly but surely transitioning to the pre-K classroom at his school. I shouldn’t be at all surprised by this–after all, he’s four and will be starting actual kindergarten a year from September–but it’s still a little jarring to know that my first baby is moving towards real school. He’s learning to read and add and subtract and multiply and sometimes write (sometimes; he’s not much of a pen holder). He LOVES numbers, loves to ask “what do 2 and 3 and 5 make?” when he sees a time displayed digitally (and if you explain “it’s 2:35” he says, “no, what do they make?” and you have to tell them that 2+3+5=10). He still adores space and wants to be an astronaut when he grows up.

And he loves his brother and sister and they love him. And all together, I love my three kids. I love being a mom, even when it’s hard, even when the impostor syndrome devil is sitting on my shoulder and telling me I’m a fraud and my kids are going to suffer for it, I love it. I know exactly where I belong, and it’s right here, with them all around me.

Nothing about this is normal; everything about this is normal

Nothing about this is normal; everything about this is normal.

I’ve been trying to write this for a total of two weeks now, probably more, but I feel like I’ve lost count. I get writing done very late at night, at a time I used to reach without even thinking about it back when I was in college and graduate school but that now seems like the latest of late hours (seriously, the sun is coming up in three hours, WHO IN THEIR RIGHT MIND IS AWAKE NOW and WHAT WAS I THINKING). It’s only then that the new normal calms down enough for my brain to start processing everything that’s gone into making the new normal… well, normal.

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(this time of night was previously known as “way too early” and “why are you waking me up?”)

We’ve been trying to make incremental adjustments to this normal in order to improve our overall functionality. The twins are creeping ever closer to sleeping through the night, but it’s still a process. The first half of any given night typically involves Carrie being wide awake and unhappy unless she’s being held; she doesn’t care what’s going on while she’s being held, she just wants to be held. As she’s being held, she’ll contentedly babble to herself or look around or chew on her hands, but put her down at your own risk. Isaac, meanwhile, conks out at promptly 8:00 and doesn’t wake up again until 7 or 8. And Carrie typically conks out after a midnight-ish feed of 2-3 oz., so really, it’s mostly just a long night for me.

BUT I wouldn’t trade it because I can’t do early mornings to save my life. I’ll stay up until 4 if I have to, but don’t make me get up at 4.

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(no, I don’t understand it either)

So with the twins creeping towards sleeping through the night, Kyle and I have tried at least once to actually make it through the night sleeping, but that hasn’t happened. The twins’ daytime schedule got thrown off the last time we tried, which resulted in them freaking out all night and poor Kyle getting no sleep (per his suggestion, he slept downstairs with them, since he’s better at sleeping on the couch than I am; he got me up at 5 a.m. and slept until 9 a.m., when he started work). Worse, I didn’t get any sleep either, because when your body and mind are used to staying up until 2 a.m., you can’t shut them down before at least 1.

This is the new normal: so little sleep that when allowed to just wake up “whenever,” both Kyle and I will easily sleep well into the afternoon, which didn’t seem like a big deal when I was younger, but now I panic because most of the day is gone, and I have STUFF TO DO.

The new normal is chained inexorably to a schedule from which I hate deviating because deviating from that schedule ruins everyone’s day. It’s the twins’ eating schedule: bottles at 7 a.m., 11 a.m., 3 p.m., and 7 p.m., plus a mini bottle at 11 p.m. for Carrie. Deviating from that means that trips out of the house must be postponed, that the night will be fitful at best, that the adults’ meals all get thrown out of whack (or at least breakfast and lunch), that everyone is cranky and exhausted. Even when we leave the house, I’m adamant that we follow the schedule until the twins reach a point where we can drop one of the daytime feeds and just feed them three times a day, like we do with Sam.

That, I figure, will happen around the time they’re able to hold their own bottles, which is one of those milestones you don’t really think about before you encounter it, and then you’re suddenly like “oh my god, I have HANDS!”

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(shown: me when feeding the babies at present)

This is the new normal.

Sam has a hard time with the new normal, because he has to share us with the babies, and even though it doesn’t (usually) make him mad or sad, he still struggles with it. I try to keep him in the daily schedule as well: a movie of his choosing in the morning, lunch, learning time, Kindle time, dinner and cuddling, bedtime. This doesn’t always happen, particularly the after lunch stuff. Sometimes, I’m just so exhausted that I give him a second movie after lunch so I can try and sleep. Sometimes, I rush through learning time and give him his Kindle early so that I can help whichever baby is panicking because I’m no longer in their line of vision (I forgot about this phase; it’s exhausting, and I miss leaving the living room).

I miss being able to give Sam more consistency, and I know a billion people will comment places and say, “You just have to…” and to them I say, no, you come and try and do this. This is not. easy. It’s never just doing anything. There’s a schedule that I want to be ironclad because if it’s not ironclad, if anything gets slightly thrown off, everyone struggles through it.

Honestly, I think that’s the most frustrating part: when you’ve got twins, you get a lot of unsolicited advice. Thankfully, it’s rarely from people Kyle and I know well, so we can just brush it off, but you still get the occasional, “Oh, you should do XYZ!” suggestion that’s completely unhelpful, if well-meaning. And those are the worst, because you want to tell the person with that suggestion “hey, go eat a diaper,” but they mean well, so you put on a pasted smile and say, “I’ll try and remember that, thanks.”

(also funny, whenever someone sees that you have twins, they’re compelled to say, “Oh, my brother’s best friend’s cousin’s coworker’s nephew has twins!” especially if they’re a stranger, and you’re just like, “…okay?”)

This is a little bitchy. I apologize. I’m tired.

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Unhelpful suggestions abound towards a new corner of the new normal. We took the twins to have their heads looked at and came away with an official diagnosis of moderate-to-severe positional plagiocephaly. The doctor was… kind of a jerk about it, honestly. You could hear the “this is all your fault” laced through every sentence, and I came away feeling chastised and clutching only a confirmation of a follow-up appointment in 6 weeks. He mentioned physical therapy, but he didn’t give us any details. He said, “They’ll definitely need helmets,” but didn’t do anything else at the appointment.

And, well. It was frustrating. I came away just this side of furious, because it’s like… dude, can you come down off your high horse and put yourself in our shoes for a minute? These guys were born six weeks early. They didn’t reach the newborn phase until they were six weeks old, and they’re behind on a lot of things because of that. They’re only just now starting to be more awake during the day; up until probably 2-3 weeks ago, they just slept. A lot. They were born with weaker necks and softer heads that should’ve had at least 4 more weeks in utero to move around and get firmer, but they came early and slept in cribs when they should’ve been sleeping in me. Their neck and chest strength isn’t where it would be for four-month-olds born at term because they weren’t born at term. And all the tummy time and holding and therapy in the world isn’t going to change that.

I don’t know. I may be reading some of my own guilt into his tone (though Kyle picked up on it, too). I wish I could be as ON them as I was with Sam. I wish that I could reach a point with them like I did with Sam where my arms felt empty without him, not because I was like “Gosh, I wish I was still holding a baby” but because I literally held him so much that it felt weird not to have him on me.  I wish we’d be at the point where we’ve moved from survival mode to the previous sense of normal, but.

Well. Here we are. Normal helmets. Normal babies. Normalcy that’s anything but.