Senioritis

Do you ever get in one of those foul foul moods? Or not really a foul mood, but a mood where everything you want to talk about comes out tinged with complaining? And you don’t want to be that person that nobody wants to talk to or about because they’re always complaining, but it’s just. There.

I feel like that’s me right now, so close to the end of this pandemic, hope being dangled in front of me, but still far enough away that something or someone could ruin it, and maybe because things feel mostly good, the bad is amplified somewhat? I don’t know.

I try to do the gratitude thing, but that feels disingenuous, like yeah, I’m grateful for a LOT, but that doesn’t make the bad feelings go away any. And I want to be honest in my writing, but I also don’t want everyone to be like “ugh, Abby’s complaining again, bye.” Because I know things aren’t that bad, BUT.

Well anyway.

Hi. 

I guess I can talk about the angst first and then end on a good, or better, note. The angst stems 100% from my sciatica and how it makes me feel so… limited. Because I am limited. I don’t know if it’s fear of pain or actual pain, but I’m constantly finding myself incapable of doing things that used to be easy for me, like cleaning the house or taking a walk or standing in the kitchen cooking dinner for the kids. It’s not the worst thing ever, like my pain isn’t back at Thanksgiving levels, but I think on some level, every time I feel a twinge, I worry that it’s going back there, so I limit myself.

I’m fortunate enough to have a really understanding husband who would rather I limit myself now, before it gets bad enough that I like. Need adult diapers at not even 40 years old. But it’s still frustrating. I don’t know how to explain it, really. It’s like one day, you’re able to do things, and then the next, you find yourself stuck for an indeterminate amount of time. You forget that there’s an issue because you’re feeling better, so you start picking up stuff off the floor, but then two minutes later, you have to sit with your feet up for another ten minutes so that you stop hurting. It is SO dumb.

And it’s so easy to say “well, do two minutes at a time!” but it’s somewhat Sisyphusean or worse. You do what you can but then you’re out of commission because you pushed yourself. 

So that’s kind of colored my last month or so, and it’s annoying, and I hate it. I’m going in on Thursday to get an MRI and find out exactly what is causing this issue and if it’s something I can fix through targeted physical therapy or if it’s something I need surgery for (though the fact that it’s lasted as long as it has makes me think that probably we’re past the PT working point). Insurance companies like to go for minimally invasive steps first, but I’m like… I’m clearly having issues here that are more in-depth than just oopsie, threw out my back. 

But yeah. Background radiation of my life, etc.

The twins turned three about a week ago, and it was a fine time. They were happy with the day, even if it kind of went by in a rush (one that I’m not getting into, but suffice it to say that my annoyance at being unable to do stuff definitely made things less fun than they otherwise would have been). 

I ended up turning their day into a much bigger Thing than it normally would have been (for Sam’s third birthday, for instance, we just went to a museum and had cupcakes) because their last birthday ended up being a flop because Covid, and I guess I wanted this year to be something of an improvement. And I think it was, but man. Twin birthdays take a lot out of you. You do something that seems like the bare minimum, except because you’re doing it for two humans instead of one, it actually feels like you’re overdoing it by a lot. 

But again: they’re happy. Which is what really matters.

Happier news without the asterisk, they started school last week! Early Intervention ends when your kid turns three, so they transferred to our town’s public preschool the day after their birthday, and so far, they’re loving it. We’ve yet to have one of those separation anxiety crying days, not even on the first day (maybe them being in the NICU desensitized them to going away from us for a while), and every afternoon, they come home talking about how they had “so much fun!” Their crafts are starting to cover the fridge and walls, and I’m just relieved that they’re able to do the art projects they love so much without me picking up after them. 

It’s surreal having kids going to school in person. I’m a little worried because Massachusetts has been trending upwards in terms of cases, but at the same time, the school of ~600 people (kids, teachers, staff, etc.) has only seen about 12 cases in the entire year, so whatever they’re doing seems to be working. I wonder if it will still work once the schools are forced to go full time in person in April (which I do NOT agree with–it’s two months, y’all, just take the L and prep for next year), but the kids are so good with their masks that at least I feel like they’re protected on some level.

I have no idea what their days at school look like. I know they’re getting speech therapy, physical therapy, and occupational therapy, but I have no idea what the schedule is, anything like that. And I’ll be real: it feels SO GOOD to not know. SO GOOD. Because it means that I’m not the one coordinating it! I don’t have to shepherd them into a Zoom call that they won’t pay attention to, I don’t have to freak out because I forgot a meeting, I just get to use the mornings to do Sam’s homeschooling and then let them sleep the afternoons away. 

It’s very nice.

Sam, meanwhile, is in the process of being evaluated by the school to see how he’s done this year and what accommodations he’d need in the next school year, if any. His therapists across the board have suspected that he’s not neurotypical, but waitlists to get a diagnosis from a doctor are a year long at least because of Covid, so we’re trying to push things through with the school first and see what they say. Last week, he spent three days doing academic testing, which went very well. His tester remarked that he’s clearly VERY smart, and that he does seem to have some executive dysfunction issues, but that he’s also good at getting himself back on track. 

(at least when I’m not around, but I figured that would be the case, because he’s comfortable enough around me to melt down completely and know that I’ll never stop loving him or being blown away by him)

We’re next going to talk with the school psychologist, just to see where he is there, and hopefully, we’ll have a game plan in the next couple of weeks. I’m committed to sending him back in the fall, partly because I’m getting to the academic point where I’m a little out of my depth (he’s already learning area and perimeter, and algebra can’t be far behind), partly because he needs to be with his friends again, and partly because we both miss me just being his mom, not his mom and his teacher. It’ll take the pressure off both of us for him to be back in public school, and I’d be surprised if it weren’t safer for him to do so by fall.

And I think he’s in a good place to go back. It usually takes some cajoling, but he’s been keeping up with his schoolwork, and he’s on track with other first graders in that regard. I’m excited to see what second grade brings for him, and what life with the kids out of the house for a couple of hours a day brings for me. 

(I just realized that I haven’t been home alone with nobody else in… probably six years? Or so? Maybe four? It’s hard to say)

Meanwhile, vaccines are rolling along in our house. I’ve got asthma and am obese, so I got to be the first in the house to get a pair of Pfizer jabs, the last one on Saturday. Side effects were minimal–I was REALLY tired on Sunday (slept for ~15 hours because my husband is wonderful and hung out with the kids on his own all day) and then had pretty gnarly body aches when I went to bed last night, but things have since calmed down. No fever, no chills, certainly nothing at all compared to actual Covid. 

I’m hanging out on my phone a lot to try and get my mom an appointment for her vaccines, too, since she’s part of the group whose eligibility just opened up today. This remains a tricky thing to do, but I’ve been keeping up with vaccine news, and considering how manufacturers are ramping up production, I feel like supply will overtake demand in the next couple of months, and how good will that feel? And with any luck, that will correspond with cases going down, with hospitalizations going down, with deaths disappearing entirely. 

It’s just that end of the school year feeling, that time when summer is RIGHT THERE, IT’S RIGHT THERE GUYS, and you just. Don’t care about classes, you don’t care about homework, summer is RIGHT THERE (and GOD, so much worse when you’re a senior in high school or college, you’re just like THIS IS ALMOST OVER, HOW AND WHY SHOULD I CARE??). You can’t think about your finals or about anything but summer being RIGHT. THERE. And YET, despite that feeling, it’s important to still be careful. Still wear a mask, still be safe, still make good choices, because unlike skipping homework during senior year, skipping out on responsibilities as the pandemic starts to cool down will genuinely have consequences (see: Brazil), consequences that can be deadly.

In other words: take care of yourselves, and each other.

Until next time…

Parting Clouds

I feel like this blog has been an absolute downer for the past year, though understandably so. The last year has SUCKED. I don’t think anyone had an objectively good year last year (except Big Daddy Elon Musk, but billionaires don’t count towards people having good years), and I was scrolling through my blog reflecting on how… just MLEH I’ve been about everything in the last twelve months. And again, completely understandable, but also I feel like that can’t have been fun to read. I’m sorry.

But here we are, encroaching on March 2021, one year of pandemic and social distancing and 500,000 people dying because assholes and masks and so on and so forth, and I’m actually starting to feel something that tickles a bit like hope. Real hope, not the false hope that kept popping up over the last year when people were naively like “it’ll be gone by summer!” or things like that. Real, honest-to-god hope.

After all, this is roughly the timeline they told us to expect back in mid-March of last year, when everything shut down and everything changed. Mid- to late-2021. We’re right on schedule. 

I’m getting my first Fauci ouchie tomorrow, 4:30 p.m. I don’t think I’ve been this excited about a needle since the first injection for IVF, way back in 2016. My state, dear old Massachusetts, has kind of bungled the process for people to make appointments–my dad, 68 and with a heart attack in his medical charts, hasn’t been able to get an appointment, so I’m refreshing all sites frequently to try and snag one for him–but by some flash of luck, I woke up the other day to an alert on my phone telling me that a CVS near me had appointments available. I fit squarely into Tier 2 of the second phase of vaccine rollout up here–obesity and asthma qualifying me as medically at risk of a Bad Time–so I signed up. 

And I’m ready.

(even if I’m a bit frustrated that Massachusetts hasn’t bothered to start prioritizing teachers yet while other states have and the websites to get appointments are basically strung together with some twine and duct tape and a few prayers and GOD, I wish I could take a hammer to said websites and get my handful of coding friends to rebuild them functionally from the ground up)

I have plenty of friends who’ve already been vaccinated for various reasons, ranging from frontline workers to teachers to people with medical issues and everything in between. Of that plenty, many have experienced the “your immune system is working” side effects–the aches, the fever, the chills, the generally feeling like shit from about hour 33 to hour 48 after the second dose. I’m ready for that. Kyle’s been keeping in touch with his boss about what’s going on, so with any luck, when I get the second dose, I can just coast through all of those side effects feeling vile but being mostly unconscious.

But I’m ready. I’m ready to not be afraid to go places besides Target or to not be afraid when I’m IN Target because the people behind me don’t seem to grok that six feet and six inches are not the same thing. I’m ready to feel like I’m not going to be putting myself in more danger if I have to go to the doctor for whatever reason (seriously, in the past year, I have avoided going to the doctor so many times I probably shouldn’t have because I didn’t want to accidentally expose myself). I’m ready to hopefully not be a link in a chain of people getting sick (like we don’t know yet that the vaccine prevents or reduces transmission, but the science–even with the new variants–looks pretty good so far).

And I mean. When even the most conservative estimates have everything easing up by summer, it’s hard not to be hopeful, outside of the trenches.

(in the trenches is another story, and every time I talk about hope, I think of my friends who do work on the frontlines and wish that I could somehow have a million dollars each to give them so that they could go on the most luxurious, relaxing, magical vacations of all time. Like hell, wanna spend two months on sabbatical in Hawaii? Go nuts, aloha. French Riviera whispering your name? Au revoir, you amazing heroes)

I’m getting vaccinated tomorrow, and then the twins turn three on March 14 and start school on March 15. Sending them in person isn’t a decision we made lightly; even though the school they’ll be attending has had exactly 10 cases out of 300 students and about 50 staff (and none of them in the preschool), the risk isn’t zero. On the flip side, though, Isaac has stagnated and regressed so much since daily ABA stopped, and I HATE phrasing it like that because it makes his autism sound like this horrible thing, and it’s NOT, but at the same time, I can feel how badly he wants to communicate with us, and goddamnit, I can try with the rudimentary PECS and I can say the words and do all sorts of things as his mom, but because I’m his mom, there’s a lot I can’t do. I’m not trained or qualified to do so much of it. 

He really was making such incredible progress when he had ABA five times a week, and I know the language is there. And he wants to express himself and is SO HAPPY when we understand him. And preschool will give him an opportunity to be better understood, whether that’s vocally or through signs or through PECS. Whatever he needs. I just want him to not feel like he can’t be understood, because to me, that’s about as lonely and terrifying as it gets. 

And Carrie is something of a ragdoll. She’s clever and sweet, and where communication is concerned, she’s at age level if not above it. BUT when it comes to physicality, her muscle tone is almost comically low. She seems comfortable wherever she is, which is great, but she gets tired quickly because she has to put more effort into making her muscles work than a kid like Isaac (whose muscle tone has always felt high to me because he’s always. so. tense.) or even Sam does. It impacts her ability to use her fine motor skills with holding a pencil or getting herself dressed and undressed, and I have no doubt it’s impacting her digestion. In the long term, it’s going to cause problems for her–she’ll be in pain, and I don’t want that at all. And if we can get started fixing it now, if I can get her therapy now, maybe she won’t follow in my footsteps and end up in remedial gym or getting an MRI for sciatica and feeling like she’s in her 90s when she’s not even 40 yet.

Plus, they’re SO good with masks. It’s kind of surprising, honestly. I would’ve expected the twins to just hate wearing a mask and to fight it all the way, but the two of them are absolute champs. They even have Barbie and Hot Wheels disposable masks along with the other disposable masks I’ve gotten them for the remainder of the school year. I think we’ll be okay. I think they’ll thrive in school, and I think we’ll be okay. 

For the first time in forever…

…I can kind of see the rest of the year clearing up, like the way the sky clears up when it finally stops raining after a particularly long stretch of wet days. I feel like when I say, “when the kids go back to school in September…” I’m not doing some sort of wishful thinking; I’m saying something that will happen. When Sammy goes back to school with his friends, when the twins are in preschool five days a week, when I see my extended family for the first time since Christmas of 2019. WHEN, not IF.

Speaking of Sammy going back to school (WHEN that happens), I got in touch with the special ed department at his school to see if they could evaluate him for ADHD and autism or at least just to see if he has anything that would require an IEP to deal with in the coming year. His therapists have him on a waitlist to see if he can be evaluated outside of the school, but because of Covid, that waitlist is excruciatingly long–we’re talking years–and I don’t want him to start second grade at a disadvantage. I know that whatever else is going on, he deals with a lot of executive dysfunction and hyperfixation. I know that his mind goes so fast from one thing to another to another, I know that he acts like boredom is torture. I know that the idea of failing at something even a little brings him to tears, no matter what reassurances we offer. I know that if he’s asked any question about himself, no matter how benign, he shuts down and furiously refuses to answer. 

I don’t know what that all adds up to. I do know that it affects his schoolwork. That he melts down when something is hard for him, that it’s an absolute WAR to get him to do his social studies and reading. That he doesn’t focus, can’t really focus, even on subjects he loves. But give him Pokemon or Minecraft or the deep sea, and he will tell you everything in excruciating detail. That he’s terrifyingly smart–doing third grade math as a first grader and absolutely OWNING it–but that he needs someone to help him apply that intelligence.

And I don’t know. Maybe it’s that I’m not as good of a teacher as I like to hope I am. When he’s on, he REALLY gets stuff. He’s getting straight As in math without even blinking, and I think he’s doing okay with improving his spelling and handwriting, but I feel like there’s something about his learning style that’s out of my reach, and if nothing else, I’d like to see if the staff at his elementary school can identify it. 

SO. 

A lot on my plate. Again. I can sort of feel my sciatica flaring, but I’ve been more careful to take time off and be diligent with my medication because I am NOT doing that again. I have an MRI to look at it up close on the 8th, and until then, I’m just taking it all one day at a time and knocking items off my to-do list little by little. 

And feeling like the sun is starting to peek through the clouds. Which is nice.

The Final Countdown

The countdown is on, my friends: 39 days until the twins start preschool in our town’s integrated special education program.

I’ve had this countdown going for a while, but until Wednesday, it was unofficial. And admittedly, the situation isn’t ideal, but

Well, let’s start from the beginning.

Back in 2018, in August, Isaac started working with Early Intervention therapists because he had torticollis in his neck (which means that he had a hard time turning his head, probably as a direct result of it being firmly wedged up against my pelvic bone for the last 8 weeks of the pregnancy). He saw a physical therapist fairly often to gently ease him into having less of a stiff neck. About four months later, Carrie joined him in the arena of physical therapy, since she was being very slow in terms of gross motor skills. 

As time passed, both twins gained more services–occupational therapy, speech therapy–and Isaac was eventually diagnosed with autism; and then, Isaac started ABA therapy and did fantastic with that, too. Up until the pandemic, the services we had were doing a fantastic job ensuring the twins were progressing in their development at an appropriate pace, and they had even started attending a once a week playgroup so they could start learning how a classroom worked for when they started preschool.

Because, you see, the beautiful Commonwealth of Massachusetts pays for therapy up to kids’ third birthdays–that’s what Early Intervention is. After the age of three, though, the state stops paying, and you have to hope that your kid qualifies for special ed preschool or even with insurance, you’re going to be shelling out a LOT of money for therapy.

So anyway. The world tried its damndest to stop last year but failed to do so, and the twins’ third birthday is rapidly approaching. Amidst my planning for a nice, lowkey celebration (read: no party whatsoever, maybe just my parents coming over, cupcake flavors, presents all purchased), we’ve also been planning for that transition, because as of March 15, the twins’ services won’t be covered under Early Intervention anymore.

None of them. Not speech, not PT, not ABA. 

So about two weeks ago, we took the twins into our primary school for their assessments. It’s the same school Sam attended last year and will attend in the fall, and he was really excited and proud of it, talking about it as if he hadn’t been there in decades (“oh, yes, I remember the auditorium!” “of course, that’s the office!”). The preschool was set up in such a way that everything was absurdly spread out, which was a good sign; with OT and PT, we aren’t going to be able to keep the twins six feet away from everyone all the time, but seeing that the classroom was set up in a way that physical distancing was encouraged when it could be was reassuring.

During the assessment, Kyle and Sam and I sat at one desk off in a corner of the room while the twins played with the therapists in another corner. Carrie immediately took to the dollhouse they had and quietly set about tucking a plastic kitty she found into bed, while Isaac stood in one place and observed everything while smiling that amazing smile of his and making every therapist and teacher fall in love with him.

The whole thing lasted about an hour, maybe a little longer, and we were keeping our fingers crossed the whole time that both twins would end up qualifying for services. We never doubted that Isaac would–after all, he doesn’t speak independently yet–but we weren’t sure about Carrie. She’s behind, but her delays aren’t as obvious as Isaac’s, and her delays could probably be helped with a longer, slower path, if at all. 

BUT the amazing therapists saw exactly who our twinsies are and saw where Carrie was struggling and where Isaac was struggling and recommended that they both attend preschool five half days every week. 

And with the pandemic going on, I’d be reluctant to agree to that because there’s all these new variants making everything worse, and who knows when any of us will be able to get our Fauci ouchies, but today, we got the IEP with the breakdown of services.

If we leave out the preschool aspect (which would be roughly ~5 appointments per week), we’re still looking at $175/week for Isaac in copays and $125/week for Carrie in copays for all of that therapy. And they wouldn’t get that level of therapy outside of school, BUT a lot of it is stuff I feel like they’d really excel with having, stuff I never would’ve thought of, stuff that I don’t know they could get in an at-home environment because of the pandemic.

Carrie, for example. I’ve worried about her core strength and muscle tone for a while (she’s always been something of a ragdoll floppy baby–never in a way that makes you terrified, but she’s very good at molding herself to you), but never loudly enough to raise alarm bells to therapists and doctors. She demonstrated it so well during her assessment, though, that they planned for her to have just as much PT and OT as Isaac, and that’s a huge relief.

And Isaac has the full cocktail of services–PT, OT, speech, and ABA, all provided by the school. And I’m REALLY relieved. His ABA therapists have been great, but because of the pandemic, they’ve been really sporadic in their availability–going back to school, having to quarantine because a family didn’t bother to mention they tested positive, just unavailable because nobody wants to be going into homes these days. Giving him the opportunity to get those therapies in person five days a week… GOD, it’s just such a weight off my shoulders. He did so well with just ABA in the mornings from March through October, I can’t wait to see how he takes off when he’s getting all of these therapies all the time. 

So everything is in review, I am buying six billion child-sized surgical masks every week (they come with Barbie and Hot Wheels prints at Target!), I am waiting for a TON of paperwork from the school, and I’m feeling an honest weight lifting off me. 

39 days. There’s obviously some additional relief there, with me suddenly having MUCH calmer mornings than I’ve had in three years (let me tell you, in September, when we’ve all gotten our Fauci ouchies and everyone goes back to school full time and Kyle is commuting to the office 2-3 days a week and I’m ALONE for the first time since ~2013, omg, I am going to party SO hard, by which I mean I am buying a box of a dozen doughnuts after dropping the kids off and eating them ALL BY MYSELF and then enjoying the sugar coma until it’s time to pick the twins up), but most of it is a mixture of apprehension about Covid and relief about the services continuing with a much more consistent delivery that won’t completely bankrupt us. 

I’m taking my time processing it all, and in the meantime, I’m just quietly shopping for first day of school outfits. In March. For twins. Who are almost three.

Because I can’t make the pandemic magically go away (if only), and I can’t look into the future and see that these services will work out really well for them both, but I can make them both look hella cute on their first day.

Ob-La-Di, Ob-La-Da

This was going to be a long blog post about the inauguration and politics in general, but that leaves me feeling tired. Suffice it to say that I’ve breathed a sigh of relief, but I also acknowledge that there’s a lot of work that needs to be done, and I’m focused wholly on the future and how to improve things instead of bemoaning the immediate past. The past informs the direction that we need to take as a country (a wholesale rejection of white supremacy, measures to rectify massive wealth inequality, having an actual PLAN for the pandemic instead of just pretending it doesn’t exist so we don’t spook the markets, etc.), but I’m through arguing about the past four years. They were politically terrible. Let’s move forward.

Instead, because I don’t feel like getting my blood pressure up today, I’m talking about life overall, or life in our house, at least.

Because it goes on. Like I said last time, insurrections, elections, inaugurations, Bernie with his mittens, it all happens and it all affects you, but at the same time, life goes on. You read a headline, you feel angry or sad or hopeful (which is new), then you have to run to the post office or call the kids’ therapists or something or another. Maybe you discuss it, you sign a petition, you run to a protest, you donate, but life is going on with or without you.

Life goes on. 

The twins had their preschool evaluations on the fifteenth, and it went well, I think. They met with the entire preschool team, with the physical therapist running the evaluation while the others–the teachers, the SLPs, the OTs–took notes and observed. Kyle, Sam (who was there because we didn’t have childcare for him), and I sat in a corner of the room that was separate enough for the twins to not zero in on us instead of what they were supposed to be doing.

They started out pretty shy. Carrie warmed up to the situation first, when she saw that they had a dollhouse, because she is quintessentially what toy marketing execs want a little girl to be. She loved that the dollhouse had a little toy cat with a little toy toilet and a little toy bed, and she spent a great deal of time meticulously tucking the toy cat into bed or settling it on the toilet, not really talking about what she was doing, just doing it. She was SO quiet that the SLP had to come over and talk to us about her speech, and we talked about her on bad days–preferring one-to-two-word phrases over sentences, even though she CAN use sentences, and murmuring nonsense under her breath to tell you things. She’s very stubborn, so if you want her to talk to you, she just will not do so. 

She also, apparently, struggled with her fine motor strength–not her accuracy, but her strength, coping the OT’s movements with her crayon but not really applying a lot of pressure.

And, really, much of the evaluation was for her. Isaac’s struggles are pretty easy to spot and pretty easy to describe. He spent the first ten minutes of the evaluation standing stark still like a statue and smiling shyly behind his mask. Though he eventually warmed up, he’s mostly nonverbal still (which is more of a “behind” thing than a permanent thing–he’s about where Carrie was between 12 and 18 months, and I think he’s mostly stagnated because the pandemic has prevented us from having in person speech therapy for a year now. Like, we work with him, but we don’t necessarily know what to do to encourage him to, for example, speak independently instead of parroting us) and has exactly zero sense of danger, which combines poorly with his extraordinary fine motor skills. 

(which sounds kind of cool, but you don’t expect your two-year-old to figure out how to unlock a window, create a tower of stuffed animals to reach the lock, unlock and open the window about two inches, figure out how to open the screen, open the screen, and then start tossing his toys down from the second story window. That’s a surprise. So yeah, the windows in the twins’ room are duct taped shut now)

But the evaluation was both to get an idea of where Isaac is and to see if Carrie actually qualifies for the preschool’s special ed program. She’s right on the border where she MIGHT need the extra help, but she might also catch up with her peers by just being with them. It’s hard to say. And it’s not a huge deal either way–when I talked with the head preschool teacher over Zoom, she explained that Carrie will have a spot in the program no matter what, it’s just a question of whether she’s there for free as a special ed student or whether we pay the $140/month tuition.

And even that isn’t a big deal. When Sam was in preschool at the twins’ age, we were paying probably… mmm, I want to say about $200/week because it was a full time private daycare. Which I LOVED, but I can even point to ancient blog entries I wrote here about how I realized that having twins meant no more daycare for anyone. So back then, I was wondering “omg how are we going to even afford preschool for them, that’s $400/week, that’s $1600/month, how can we do that, that’s a second mortgage?”

The idea of both of them going and us only paying $140/month? $35/week? It’s kind of miraculous. And if it’s free, I’m just going to do a dance.

We’ll find out sometime this week how things went, and then we have a meeting on February 2 to set up their IEPs (or IEP if Carrie doesn’t need one). And that’s WILD to me. I’ve talked so much about IEPs with so many people (my sister always had one, my mother-in-law is a special ed teacher, one of my besties is an SLP, etc., and that’s not even counting the huge village of parents of children with IEPs who are like “yes, I will help you with this, I will tell you how I best advocated for my kid”) that actually diving into one is like

Let alone diving into TWO.

We’re very fortunate. Our town is apparently one of the best in the area for special education from top to bottom (which isn’t surprising; everyone here is some degree of wealthyish and it looks like fucking Happy Valley from “Mickey and the Beanstalk” and then there’s me with my overgrown ugly lawn covered in dead leaves like “oh yeah, I totally belong here!”), so while I know I’ll have to fight for a lot of things, I don’t feel like I’ll have to fight as hard as I would have somewhere else.

(like apparently, my hometown, which is just a few miles down the street from me, has one of the WORST special ed programs in the area. They used to be good, according to all of our therapists and contacts, but nowadays, things are just garbage from top to bottom)

It’s a lot. But I feel ready.

And life goes on.

And it might end up being THREE IEPs, anyway. Sam’s been having in-home therapy for a couple of months now to deal with, oh, a whole bunch of things. His anxiety had reached a point where he wasn’t sleeping in his own bed at all, he has days where he barely eats, he’s an absolute ping pong ball if he doesn’t have something with a screen drawing his attention… it’s a lot. Kyle and I had a sit down talk with the therapists over Zoom on Monday, and they suggested having Sam evaluated for both autism and ADHD. 

The autism bit has me a bit skeptical. They were noticing a lot of the outward signs, and I agree that Sam has a lot of sensory issues, BUT if he is autistic, he’s also the most adamantly extraverted autistic kid I’ve ever met. And that’s not to say that autism can’t look like that–it’s a sundae bar, after all, and you can have all sorts of weird varieties of stuff going on–but it’s just. I hate to say this because it’s so not clinical, but he doesn’t ping my autism radar the way Isaac did from ~day one. Isn’t that a dumb thing to think? Like “mom hasn’t ever gotten autistic vibes from him, not even a little” is not a good diagnostic criteria, and should not be used as a diagnostic criteria.

I took one of the screening tests for him, the one they use in clinical settings, and maybe I’m too close to him to see (but unless I’m missing something, I feel like a lot of these tests are just asking parents how their kid is anyway and then observing in a play setting?), but he scored way too low on the autism test to even warrant further testing. And again, maybe I’m just too close to the situation, but like. I can’t imagine I’m missing THAT MUCH, you know?

Now, on the ADHD test, on the other hand, he scored off the charts. Everything from his lightning fast mind to his constant movement (not stimming, just MOVING) to his general breakdowns if he gets a question wrong was right on there. But professionals who see him in brief settings keep saying “no, he doesn’t have ADHD, but he’s probably autistic.”

I don’t know how to respond to that! I go, I do the assessments that are available, and maybe I have confirmation bias or maybe I’m too close to the situation or maybe I’m just crazy, but I end up getting super low scores for autism and super high scores for ADHD and I just ???? am I missing something? I see this child all day every day. He’s my son. We talk all the time. We snuggle up at bedtime and go over his day. He tells me matter-of-factly how he feels about so many things. I know when I can and can’t push him on things, when we can work through something or when we need to disengage from it. I’ve SEEN him from the moment he was born, and I’m just so confused here. Are they seeing something I’m not? Are we all just misinterpreting the same information?

Anyway. We’re trying to get in touch with someone to schedule an evaluation for the next soon, because if he does have autism or ADHD (or sensory processing disorder, which I also suspect), I want to know ahead of time so that I can plan IEP meetings for when he gets back to school in the fall. If nothing else, I want to be able to talk to the school in general to say that while he’s soaring in math and science, and while he can read perfectly well, he struggles with handwriting, with creating sentences, and with reading comprehension. 

SO.

Life goes on.

It goes on for me, too. I started my inauguration day with a visit to an orthopedic specialist to talk about my back. Here it is:

Note how spines are not supposed to look like that. I apparently have slight scoliosis (less than a 25 degree curve, which means I’m not really a candidate for surgery, more for just PT and figuring out how to live life overall with a wonky spine), some twisting going on (though it’s unclear if that was just posture-related or is an actual Problem), and bone degeneration that’s a bit more than usually expected at my age (not quite 40). I’m supposed to be getting on a calendar for an MRI sometime in the next near future so that we can see what nerve involvement is there, and if there is nerve involvement (which there is, I can feel it), I’m a candidate to get an injection of anesthetic and steroids into my sciatic nerve in order to keep it from, you know, murdering me. 

It’s both vindicating and frustrating. On the one hand, I’m able to point to it and say, “LOOK, see, the fact that I’ve thrown my back out at least once a year since I was 20 has a REASON behind it. I’m not being overdramatic, I do have some issues that could stand to be addressed in numerous ways!”

But on the other hand, I feel frustrated that I’m just learning about this now, that I didn’t think to get it examined before, when I was throwing my back out with such regularity, not necessarily because I was lifting something wrong or doing something weird but because my back is just prone to spasms. I could’ve spent years working on this and not been here, feeling miserable and useless.

Oh well. The best time to plant a tree is 20 years ago. The second best time is today.

And life goes on. The pandemic is slowing, slowing, slowing. It doesn’t feel like a very fast slowing (because how would slowing be fast??), but it’s happening. If President Biden is able to really get his vaccination plan off the ground, maybe summer will be normalish, maybe we’ll go on a very short vacation to like Hershey Park and Sesame Place, maybe this isn’t a forever sort of thing. Maybe we’ll get on a plane again someday, maybe we’ll travel across the country and the world again. It feels possible, which is a huge step above where it felt even a month ago, and I’m grateful for that.

Until then, though, life goes on.

Check it off

This year, when we went to my parents’ house for Christmas Eve (we basically see them every week anyway), my mom talked about how she’d felt a bit like Christmas was another thing on her to-do list sometimes. That with everything to check off–the decorating, the buying, the wrapping, the cleaning, the cooking, the baking–it can feel like it’s just another Thing. And Christmas is absolutely my second busiest time of the year, no doubt. The March-through-July stretch is still a LOT crazier because every event every month in that stretch is a Big One, not an optional one, and none of them are my birthday.

But still. 

So yeah, Christmas is a crazy time of year, but it’s usually also a rewarding time of the year. Sure, I’m pulling my hair out somewhat when we try to finish up on Christmas morning so that we can get to my uncle and aunt’s house before everyone settles in for dinner, but then there’s the catching up with everyone and the laughing and meeting new babies and new boyfriends and sometimes, my uncle makes this amazing saffron cream pasta that makes you understand why people pay so much for saffron…

Which isn’t to say that this year wasn’t rewarding. It was, just. You know. Different.

Like all of 2020.

We’re still combing through everything the kids got. My parents and Kyle’s parents spoiled them, of course, because that’s what grandparents do, and our playroom is currently overflowing with both (a) boxes, and (b) toys. We’ve been bringing things out one at a time, all while trying to sort through what’s in the living room and find places for that.

Sam got a pair of robots and some video games for Christmas, along with a few Lego sets, because he’s frustratingly easy to shop for. He’s one of those kids whose interests are narrow and specific, so on the one hand, you know exactly what themes to hunt down in toy sections; but on the other hand, you’re just like… I really want to get you something different, but all you want are these things. But he’s seemed pretty happy with what he got, and I feel like his gifts have much more staying power than the twins’.

Isaac was the one I thought would be least impressed with his gifts, but to my absolute surprise, he’s the kid who took to everything the fastest and has been playing with his gifts most consistently. Santa gave him a singing Mickey Mouse train, Kyle gave him a weird musical toy called a “Rocktopus,” and my parents gave him a little red Playmobil minivan. The train and the Rocktopus are never NOT singing, and the minivan, despite being hard as a rock and full of breakable things, has become his first ever “must have it in bed with me” lovey.

And Carrie, who is every little girl ever, received pretty much the best gifts for every little girl ever: an Ariel doll, a makeup table (for pretend makeup, of course), a dollhouse, and a dress up gown with accessories. She’s been frolicking about the house in a whirl of joy, and when she’s done being whirly and joyful, she falls into my arms, sighing happily and saying, “Oh Mom. I you so much!” (which is her way of saying that she loves me so much)

So it’s been good. And Kyle and I spoiled each other, too (I gave him Whataburger sauces and a fancypants sleep mask; he gave me jewelry and my very own fountain pen), and we spent Christmas Day doing nothing but watching movies on TV while eating popcorn and pretending that it was a normal Christmas and we were totally at our local theater and not scrunched up on the couch and saying things like “SAMUEL MATTHEW, STOP RUNNING RIGHT NOW.”

We saw Soul first, and it was honestly one of the best Pixar movies I’ve ever seen. It’s hard to explain it because the plot is kind of loose? And the message is kind of loose? But it also was a film that wasn’t escapism, that didn’t want to be escapism, that wanted you to leave the theater-slash-living room and go live life, not just exist. And it was heavy material, but it was handled in a strangely effervescent way, so that even though it was a lot of DEEP questions that required a lot of heavy pondering, you didn’t feel bogged down by them. 

And it was gorgeous and made me more determined than ever to take the kids to New York when this craziness is over.

Wonder Woman 1984 was… eeeeeh. Kyle and I watched it after the kids went to bed, having our first “date” since the pandemic kicked in, and… eeeeeh. There was a scene at the very end that had us both sobbing, Pedro Pascal and Kristen Wiig did great jobs for the most part (the CGI got in Kristen Wiig’s way towards the end, which was a shame), and there were some fun moments, but… eeeeeh. It was disappointing. I didn’t go in with super high expectations, and even my lower expectations weren’t quite met, so that’s a shame. Still one of the better DC movies but… eeeeeh.

And thus the year is finally, finally drawing to a close. I know that the world in general won’t turn a magical corner on January 1 that has everything back to what we want it to be (though wouldn’t that be a trip), but at least we have the vaccine and a new presidency to shake things up a bit, and hopefully, by this time next year, I won’t be digging for scraps of things that made this year good. 

It’s funny. Back last December, I bought a memory jar for us to keep this year, figuring we’d have a lot of cool memories to read about on December 31 as we counted down to midnight. It didn’t last long, mostly because mindfulness, while awesome, is one of those things it’s harder to do when you’re in the trenches of motherhood. You know what I mean? Those days, those weeks, those years where you give all of yourself and then some, and you take a shitton of pictures, not to show off your awesome mommy skills or embarrass the kids in the future but because you can’t be in the moment. You’re clinging by a thread, and you want to remember the good, but you can’t focus on it because the bad keeps showing up.

It’s not been the worst year for me; by comparison, we had it pretty easy. Despite Kyle losing his job in the spring, he got a MUCH better job in the fall, one that pays more, even if the benefits need some work. Sam being homeschooled has meant I can really focus on him for hours at a time, despite the twins, and he’s been able to get a more individualized learning plan (read: my six-year-old is doing multiplication and division without even thinking about it, and it’s weird). He and I have had more than a few outdoor adventures, including a really fun hike back in October (sigh, that was roughly the last time I felt healthy enough to get out and go) and a visit to a nearby pond. 

Sam and Isaac both started therapy (in December and March, respectively) to help deal with everything. Isaac’s ABA has been better than I expected and not the nightmare I’d feared; Sam’s therapy has just started, but I can already see how he’s much calmer on therapy days than on days when his therapists don’t come. They’re both doing really well, and wildly enough, they’ll both be starting school again next year… in March and September, respectively. 

I was hospitalized for my mental health, and I’ll be real, it’s a miracle more people haven’t done that this year. I’m lucky: my husband noted that I was doing really badly (I legitimately do not remember this summer, that’s how bad it was) and MADE ME get help. I learned the difference between wanting to die and being overwhelmed by life (there is a difference), and I learned actual real coping skills. I’m starting maintenance therapy next week so that I can focus on keeping my brainmeats healthy instead of letting them slip and slide and become a mess again. 

I have a path forward for my physical health: my doctor has finally referred me to an orthopedic specialist for my back, and with any luck, I’ll have a specific way to get to a point where I can actually get out again (like I feel like I could now, but it’s cold and I’m also terrified). I survived the worst physical pain I’ve ever felt this year, somehow (wild thing about sciatica being that you’re in the worst pain of your life, pain so bad it gives you PTSD, but you are nowhere near dying, and when the pain ebbs, people mostly just tell you to walk and lose weight, like they do whenever you have a problem while fat). I had surgery and ruled out a major potential cause of my overall life issues. 

So it hasn’t been an all bad year for me. But I’m still eager for it to be over. 

I don’t necessarily think 2021 is going to be better overall, at least to start, just that we’ll all mostly be used to the chaos, so it won’t hit as hard. And slowly, slowly, things will get better. Plenty of people will still be idiots, of course, because that’s the world we live in, but idiocy can be mitigated by good people doing good things and stopping bad things. It’s going to be rough going. None of the positive things are quick fixes; they will take time, and they will need a lot of pressure, and just because things are no longer at an immediate boiling point does not mean things are better. Creating a better world is a true effort. 

With that in mind, I decided that no, 2021 is not my year. It is my bitch. I am transforming myself into a screaming banshee of rage and forcing things to get better. I will scream and I will fight and by this time next year, I will be able to say, “you know something, that wasn’t a half bad year after all.”

I hope you’ll fight with me. Until then…

Progress

Weekday mornings at 9:00, Isaac’s ABA therapist arrives.

(we’ll call her Y here)

Isaac knows when it’s about time for her to get here, and he perches himself on the back of the big couch, the one against the picture window. When he sees Y’s car pull into the driveway, he smiles his happiest smile and watches her walk from her car to our front door, and he beams at her as she comes inside. 

She washes her hands first thing (after all, we’re still in a pandemic), and then she goes into the toys room (it’s supposed to be a dining room, but Sam’s toys have kind of taken over, and we don’t really have the best dining furniture anyway) to get the Box. The Box is essentially a lockbox full of developmentally appropriate toys: crayons, blocks, beads, puzzles, Play-Doh, etc. The Box only comes out during ABA time and gets put away when ABA time is over, so the toys mean a lot to Isaac (and to Carrie, who gets ABA therapy at the same time Isaac does). 

ABA is a lot less structured and behaviorally focused than I’d expected it to be. Isaac mostly directs what they do himself, with the only real therapeutic mandate being that he has to communicate as much as possible during play. This typically takes the form of him asking for things by saying their name and saying, “please” (e.g., “please puzzle” for today) or making a verbal choice between two things (e.g., choosing between the yellow crayon and the purple crayon… admittedly, a very difficult choice). 

For two hours, from 9:00 to 11:00, things are pretty blissful. Isaac loves Y to pieces (and she’s fantastic with him), and he loves his Box. I can’t tell you if he’s got one favorite toy in there that matters more than the rest, because he bounces between them so happily, though he makes sure that he spends a healthy amount of time with each one. He likes stacking shapes and building with blocks. He likes using crayons–both fat and thin–to make various masterpieces in a coloring book. He likes putting together the puzzles and naming each picture. He likes smushing the Play-Doh between his fingers. He likes pushing the wheeled toys–a fire engine and a singing puppy–around the living room. 

When it’s time to clean up and have lunch, he helps, because he’s a firm believer in everything having a place, and the toys’ place is in the Box. Y takes the box back to the toys room and says good-bye (Isaac always says, “Bye!” very happily, I think mostly because he knows how to say it), and then it’s time for lunch. 

*

ABA is one of those things that I find difficult to talk about with people I knew well before Isaac got his diagnosis, because in a lot of adult autistic circles, ABA is tantamount to child abuse. It’s painted as a way to erase your child’s autism, as a lot of negative reinforcement, as trying to make your kid “normal” rather than as accepting them for who they are.

And the reason I’ve found it difficult to talk about ABA is because… well, our ABA isn’t like that at all. Not even a little bit. 

I’m not saying that to invalidate anyone’s experiences, because I believe them, and I can see where ABA therapy has the space and methodology to become really nasty, really easily. And I’m also really frustrated that it’s often the only therapy approved by insurances.

I remember when Isaac first got his diagnosis, the doctor who gave him the diagnosis said that maybe he wouldn’t even need a diagnosis in a few months (of course, this was before COVID turned everything into crazy town, so who knows what she’d say today?). The way she said it sort of suggested that ABA and therapy would remove Isaac’s autism, but they haven’t done that, and that pleases me. He’s autistic. That’s as much a part of who he is as his brown eyes, his adorable giggle, his amazing hugs (seriously, this little guy gives the best hugs). 

What ABA has done for him is given him a way to communicate with the rest of the world and a way to not feel so frustrated. He’s always been a kid who desperately wants to be understood, so when he started having those lightbulb moments with ABA where he realized “oh, if I make this noise while moving my lips like this, they understand that I want milk” they came with so much joy for him. He still gets this enormous smile on his face when he says something and you understand him. He wants to be heard. 

That he’s being heard and understood has also really improved every aspect of his life. He’s not as prone to meltdowns or tantrums as he used to be, and he’s sleeping better. He’s stopped throwing the entire contents of his and Carrie’s room to the bottom of the stairs most days (most days). Even better, for my mommy heart, he and Carrie have suddenly become inseparable. Oh, they still fight like cats and dogs sometimes, but they also refuse to sleep in separate beds at night (though if they wake up at 3 a.m. and aren’t in separate beds, it gets very loud) and they tag team almost everything. Isaac is mindful of the things that Carrie likes and makes sure she has those things whenever possible (e.g., her favorite toy in the ABA Box is the bucket full of Mardi Gras beads; she likes to drape them around her neck and around her ankles to be as glamorous as possible. Isaac knows this, and so once he’s worn all the beads for a beat, he finds her wherever she is and methodically adorns her). When he is upset, Carrie is often the first to notice and make sure that everyone else knows (“ISAAC SAD! STOP IT!”). 

I don’t know how things are going to progress in the next ~year (the twins will be aging out of early intervention next spring, theoretically, depending on what COVID is doing), but so far, ABA has been nothing but wonderful for us. And I think that boils down to two (or so) things. 

The first is Isaac’s personality. He’s an extroverted autistic kid; he wants to communicate. He’s a goofball, very talkative and curious, excited about being tall someday, loves singing, and loves people in general. And I think that’s kind of what autistic therapies–especially ABA–want kids to become: those outgoing, will tell you all about This Neat Rock They Found, absolutely hilarious kids. I’m fortunate enough that I have three (hahahaaaaaa my introverted ass is like “I love you all so much but I need sixteen naps right now thx”), that Isaac was essentially just waiting to have the tools to communicate, so when he was given those tools, he flourished. 

And like… I think a lot of people don’t understand that autism is a way of experiencing the world, not a personality trait. You can’t train it away by trying to reward outgoing behavior or punish introverted behavior (nor should you because hello, let your kids have personalities?). And that lack of understanding permeates a lot of autism therapies, unfortunately, so instead of focusing on giving kids the tools they need to express their wants and needs (because I don’t think anyone would say that giving kids those tools is a bad idea–you need to be able to express that your needs aren’t being met, and what sort of shitty life is it if you can’t ever say, “I want a doughnut”?), they focus on trying to change personalities. And that just isn’t going to work. 

If that makes sense, which I have no idea if it does. 

Anyway, the point I’m trying to drive at is that Isaac’s personality already lends itself to being outgoing, friendly, and excited about interacting with the world. And I think that this sort of therapy wouldn’t be great for a kid who’s the opposite, who’d prefer to sit down and read a book or draw a picture instead of telling you about Also I Found A Stick Shaped Like A Y.

And the second, which remains the reason I sort of stay aloof from a lot of Autism MomsTM, is parental wants and expectations. I have a really good friend whose son has autism and is about two years older than the twins, and she’s been kind of a mentor/guide for me whenever I’m like “AAAAH WHAT DO I DO ABOUT THIS???” One of the things she told me that helped me the most was that ultimately, therapists work for you, and I think that’s been enormously helpful in making ABA a positive experience for us. 

At the beginning of Isaac’s therapy, we talked about what our goals were for him, and Kyle and I expressed that we just wanted him to have a way of communicating with us. We didn’t–and still don’t–want to take away his stimming or force him to communicate in a way that doesn’t work for him (e.g., if he’d really struggled with talking, we’d have been perfectly happy to work with PECS or to learn sign language or whatever he needed). Our therapists have been really respectful of that; Y, in particular, hsa been fantastic about incorporating Isaac’s stimming into his therapy (like how she taught him to say, “ready, set, go!” by preceding a moment of spinning with those words, and now they’re his favorites). 

There’s a lot to unwrap about therapeutic goals coming from parents, because I’ve no doubt that there are plenty of less than reputable agencies eager to make a quick buck or adhere to some weird guidelines who will pressure parents into setting goals that aren’t fair for their kids. Kyle and I tend to be immovable rocks when it comes to our kids’ best interests (e.g., if you can’t present a very strong, very scientifically backed, peer reviewed reason for changing our minds, we’ll be showing you the door), but when you’re overwhelmed by a diagnosis or don’t understand what autism is, it can be easy to find yourself steamrolled. 

And at the same time, there’s a lot of pressure in our society towards conformity; not necessarily towards sameness, but rather towards not getting too far outside of the mold. Even without external pressure, I feel like parents can have an internal need to “normalize” their kid as much as possible, and again, that can lead to some… mmm, wonky therapeutic goals. 

So I guess my overall takeaway with ABA so far is that (a) it’s not for everyone, and less cookie cutter therapeutic approaches should be researched and covered by insurances; and (b) parents of autistic kids need to be educated and empowered to set therapeutic goals that don’t erase their kids’ neurodivergence but instead give their kids the tools they need to lead healthy and fulfilling lives. 

*

Tangentially related, the twins have been on a Sesame Street kick lately (just the old stuff, though; I don’t know who’s who on the new episodes, and I don’t have the mental real estate to learn just yet) and have continued to prove my hypothesis that old school Sesame Street creates early readers. Between that and the Number Blocks on Netflix (highly recommend both, btw), both twins can count to at least thirteen (and, if you accept them repeating thirteen several times before shouting “TWENTY!” they can also count to twenty) and have started learning their ABCs. Carrie is particularly blowing my mind by (a) singing the whole alphabet song by heart, (b) learning the signs for all of the letters, and (c) recognizing letters and numbers by sight. 

Which isn’t half bad for a pair of 34 week technically developmentally delayed preemies 🙂 

One Month on the Inside

The weird thing about lockdown is that not much changes from one minute to the next, even when it’s been a full month+ of hanging out at home all the time. On the plus side, I can safely say that I did not get Covid-19 when I last went to the store back in March. On the minus side, literally everything else.

nuuu

The only big thing of note is that Isaac has, despite the lockdown, started ABA therapy. ABA is apparently considered an essential service, so we have his therapists scrub down as soon as they come in the house, and since Isaac is the first kid of the day for them, there’s no huge worry that they’ve gone and gotten something and brought it to us. 

Today was day 2 of ABA, and it went… alright, I suppose. We’re still in the “let’s play so he gets used to us and then we can start therapy” stage, so it’s mostly two hours every day of unguided play with a box of toys that doesn’t leave our house but also only comes out when it’s ABA time. Carrie participates as well, which is sometimes good and sometimes bad, but both of our services coordinators pointed out that her participation is pretty important, because Isaac lives with her, so he needs to learn all of the things he’ll be learning in context of her instead of just in context of a therapist and one or two parents. 

The box of toys is all pretty easy stuff–shapes boxes, crayons, stacking toys, a firetruck. Its primary appeal is that it only comes out during ABA time, so even though the kids are playing with those toys every day, they still have some novelty to them. And it’s a plus because between Isaac “cleaning” (read: throwing every single thing he owns into the gated space between the TV and the rest of the living room) and Sam sweeping things out to the dining room/playroom with him, most of the twins’ toys are. Missing. 

Sam continues to take this entire situation harder than the rest of us. It’s a huge and difficult change for anyone, and I don’t know a single person who’s looking at the state of the world currently and getting super excited about it, but Kyle and I are at least adults with coping skills. We grumble, and we’re anxious, and when I think about the Worst Case Scenario, I have a panic attack (which is super convenient, because do you know what happens when you have a panic attack? You can’t breathe, that’s what happens, so it sends you on this delightful spiral that never ends :D), but for the most part, we have coping skills. We can conceive of restrictions lightening somewhat, and we know that if we do get sick, odds are that we’ll be fine. Hell, we’ve even got a theory that the bug that took me out for most of January and February (remember that?) was Covid-19 but nobody expected it around then, so nobody knew.

But then there’s Sam.

It’s rough on him, of course, because he’s lost school–at the very least until May 4, possibly for the rest of the year (I would be surprised if school starts up again before September). He’s lost that daily connection to his friends and teachers, his routine has been thrown to the wind, and although he’s kept his academic progress (we check in daily, he does his work, he’s doing just fine), I feel like he’s lost a lot of the non-academic stuff that kindergarten teaches you. Worse, he’s five, so he has no coping skills for just about anything. He’ll be alright for a few days, and then he’ll just completely melt down and sob and throw hours long tantrums, and when we ask him what’s wrong and how can we help, he can’t explain it. 

And we know. He’s scared. He’s lonely. He’s sad. He’s angry. He feels what we’re all feeling, but he’s only five, so he doesn’t have the same coping strategies we have as adults, and it’s heartbreaking to watch.

(but hey, at least his eventual therapy won’t be mostly talking about how he’s messed up because of his parents, so that’s a win!)

hallelujah

I see people protesting because they want to go get haircuts and go to Applebee’s and go back to this arbitrary “normal” they imagine existed, but I’m here hating lockdowns because I can’t help my kid. Yes, it’s hard not being able to go to the mall on the weekend or even just visit my parents. Yeah, I’m frustrated that I’ve had to try and reschedule about 42 doctor’s appointments in the last couple of weeks. But I’m most worried about my son, and I’m most worried about people who needed those nonessential jobs to pay their rent and get groceries and now have to make $1200 stretch for who knows how long?

I’m trying really hard to be optimistic and know that things aren’t going to last forever. By hook or by crook, 2022 seems to be the date that the experts are saying “okay, if normal even existed, look for it then.” Which is A REALLY LONG TIME to be having periods of lockdown and not lockdown and lockdown and not lockdown, but okay. 

And humans have this neat superpower of being really adaptable. We’ll find ways to make school happen and we’ll find ways to continue seeing our friends and family and we’ll find ways to reopen various things (because CAPITALISM, gosh darnit!). I know eventually, humanity as a whole will adjust.

But I’m looking at the damage happening in the meantime and feeling awfully sad that some of it could’ve been avoided and some of it couldn’t, and basically, this continues to suck.

BUT. We did get a new iPad so that Sam could do schoolwork and socialize, so there’s that.

Clinging

“Hope” is the thing with feathers –
That perches in the soul –
And sings the tune without the words-
And never stops – at all –

And sweetest – in the Gale – is heard –
And sore must be the storm –
That could abash the little Bird
That kept so many warm –

I’ve heard it in the chillest land –
And on the strangest Sea –
Yet – never – in Extremity,
It asked a crumb – of me.
(Emily Dickinson, “Hope is the thing with feathers (314)”)

I was initially doing okay with all of this, and ultimately, it was the thought of a longterm social distancing adventure that drove me to snap with rage that disappeared as quickly as it had come. 

tenor

(this happened, like, a week and a half ago)

I can’t remember what set me off, but I think it was Kyle saying the words “…if Disney World is even open by then” about our trip that’s coming up in November. The idea of living life like this the entire rest of the year just made something break a little in me, and I sort of snapped at him in that way moms do when we’ve been carrying it all inside to keep the rest of the family from seeing, because it’s fine to vent to your partner when they’re available, but the emotions show up whenever anyway, and you tamp them down because you don’t want your kids to be scared or pick up on you freaking out.

But eventually, the dam breaks a little.

I snapped, and then it was gone, and I’ve been about as fine as I can be, considering the circumstances, ever since.

That sounds like I’m dismissing things, and I’m not trying to. I’m feeling the emotions everyone’s feeling: grief over the world changing overnight into something unrecognizable. Rage about politics. Fear about what’s coming next. But I feel like I’ve got a better handle on it than I did before, when I was still hovering in the “denial” stage of grief about everything. 

(and anyway, I will eat my hat if Disney isn’t open in November)

Which is all good, because we’re kind of floundering a lot with many bizarre emotions in this house.

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Anxiety is, understandably, the big one. I think I’ve got an okay handle on that because yay, antidepressants. Venlafaxine will probably be the reason I go crazy if the world ever does end properly, but for now, I’ve got a healthy supply of it, and it turns my anxiety into either really vivid crazy dreams or just really pleasant but unrelated dreams. Last night, I dreamed about characters from the soap opera One Life to Live, which I never even watched when it was a thing that was on often. The dream also took place in a therapist’s office, but that’s it. Nothing otherwise notable about it. No portentous 19 crows or anything like that.

Nobody else in this house is on antidepressants, which creates some interesting situations, most of them with Sam. He doesn’t have a completely firm grasp of what’s going on, but he knows that he can’t go to school, he knows that his school year is probably over as he knew it (they’re saying schools are closed until May 4, but I’ll be very surprised if they reopen before summer break), and he knows he misses his friends and teachers.

So, of course, he’s scared.

It mostly comes out at night, and he’s too old for the magic jar of dirt stuff I did when he was younger. Too smart, too. He doesn’t believe it when I rub lotion on his hands and tell him it will protect him from bad dreams, because his anxieties are too big to be vanquished with some love and lotion. He knows that the world isn’t the same, and will never be the same again, and it scares him. 

He gets out of bed every night after he’s been tucked in. We talk to him, we hold him on the couch, we tell him the truth, but we sprinkle it with generous doses of hope, because he needs that. Still, he’s scared. 

He’s kind of shut down about homeschooling, and I’m not sure what to do about it; worse, I’m sort of limited in what I can do about it. He’s in kindergarten, and he’s covered most of the basics he’ll need before first grade in the fall (this will have reached some sort of equilibrium by fall or I am punching this virus in the face myself), so I’m not terribly worried about him falling behind… but I still want to try and help him learn things while he’s at home. 

He does alright for about two days when we give him a new routine, but then on day three, he decides he doesn’t like this anymore and has a meltdown. Which… okay, fair. Maybe he should just have Wednesdays off or something? The routine was, briefly, some yoga and then a video about a subject he liked, writing a sentence about the subject, then doing math. And, of course, forever checking his messages on Facebook’s messenger for kids (he’s got a long distance friendship blossoming with my friend’s daughter, and it’s basically destroying me with cute). 

I feel bad. I wish that I could be 100% there for Sam, but the twins are another adventure during this, my everyday adventure that hasn’t changed in the slightest, except that Kyle is home for that adventure all the time now, so lunch and naptime are both easier.

But the twins seem to sense that something’s amiss as well. They don’t like to not be on my lap, which makes trying to help Sam with literally anything a struggle, particularly because the twins are not small anymore. They’re two now, had their birthday less than a day after the state started shutting down altogether. Our plans to take them to the aquarium were dashed.

Everyone senses that something’s up, and nobody can really parse their feelings on it. I can’t either, but I’m trying to at least throw positive shit out into the world to see whatever glimmers of hope will stick. 

That mostly happens outside. When the weather permits, we throw jackets on the kids and take them out to the front lawn to run around for a little bit after dinner (the backyard is a disaster area, and before all of this, we were going to see about hiring someone to clean it all up for us).

The twins like to run to the edges of the yard and get caught. Carrie especially likes to look at our crocuses nosing up through the dead leaves and greening grass, and Isaac likes to watch trucks rush past on their way to the farms up the street. 

Sam likes to run, just run. He runs from the porch to our big oak tree back to the porch then to the mailbox and back to the porch and to the lilac bushes and back to the porch. Being able to run with abandon helps him, I think, because our house is not a jungle gym, no matter what he thinks.

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I try to plan for Easter, such as it is. We have candy from the Easter Bunny, or at least half of what we’ll need (the other half I need to order from our local candy shop, which is taking orders but not in store shopping). The kids need nice Easter shoes, because even if we’re not DOING anything, I want them to look cute. It’s the twins’ first Easter able to do anything besides be confused about “why is this basket on my desk?” 

I mean, they’ll still be confused, just about more things than “why is this basket on my desk?”

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Nothing is normal, but it’s the new normal for at least the next month, probably longer, at least if people are smart about this. I’m still working through my feelings about everything, kind of picking at them a little bit day by day and seeing how my dreams/nightmares play them out. I think the only real waking fear I have is not about famine or a lack of toilet paper or anything like that but of getting sick myself, knowing that my lungs are kind of crap and that, at the very least, I’d likely be one of the young people ending up in the hospital and on a ventilator, away from my husband and kids for weeks on end. Without the kids, I think I could stand it, but just knowing what it would do to them…

I have a friend who’s an RN in an ICU, and even though I don’t really pray, I pray for her, to anyone or anything that might be listening. She has three kids, just like I do, two boys and a girl. She can’t even snuggle with them anymore, not until this has all passed, and it breaks my heart for her. 

Basically, I just want everyone to hurry up and stay home and behave. I saw a post earlier about this whole thing being like when you were in elementary school and some kids just wouldn’t stop acting up, so you kept losing more and more recess time, even though you weren’t doing anything wrong. Maybe it wasn’t fair, but the teacher couldn’t let the kids who were behaving outside while she stayed inside with the kids who weren’t behaving. So you watched as the bright spot in your day was gradually eaten away because people didn’t know how to act. 

Maybe it’s because I tend autistic, or maybe it’s because it’s in the nature of the oldest child to loathe getting in trouble for something not your fault more than for other kids (like we all hate it, but I think we oldest children hate it the most; I can see the loathing building in Sam’s mind every time we scold him for something the babies are doing too, and I have to remind him that he’s older and knows better), but GOD did I resent those kids. I don’t resent the dumbasses still going out and being Typhoid Marys around the world nowadays, but I do wish that someone would throw dirty diapers at their heads.

I think about them, and I think, “This stupid thing is just going to keep going, and it’s going to be 2021 before anything is over, and we’re going to just have this long, miserable time because people don’t know how to act. There goes everyone’s recess. There go people’s lives. Womp womp.”

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I let myself think that, and then I take a deep breath.

And I say, the first thing I’m doing when this is over is packing the kids up in the van and going to spend a day with my parents. 

I plan for going back to group with Isaac and Carrie and letting them play with all the plastic toys and watching them do more art and wreak more havoc, but this time, it’ll be slightly different havoc because Isaac will have his ABA therapist by then (let’s not get into that can of worms right now, I’m so tired). 

I imagine having a weekend day again where I go up to Michael’s and get whatever craft stuff I want for whatever dumb project I’ll never finish. Like maybe I’ll get photo albums or start scrapbooking or something, or at least think about it. And wandering through Barnes & Noble, enjoying the smell of ink on paper and coffee. And going to see a movie, taking all the kids to whatever crappy kids’ movie is out because we’re free to do so. 

And eventually going out to the mall, walking those long stretches of gleaming tile and popping my head into my favorite stores. Getting a free chocolate from Godiva. Setting the kids loose in the indoor playground after patiently wandering the Lego Store with Sam. Eating something that’s wretched for me from the food court and just not even caring. 

We’ll go to the beach this summer, plan it out a little more than our last trip. We’ll bring quilts and set up a full little camp on the sand, and take off a weekday to go (after all, Kyle has been working 7 days a week the past two weeks; who knows what it is about tech companies that drives them to think, “Ah, you’re working from home, that means all your hours are mine!”) so things will be less crowded and we can get a spot closer to the water.

(probably not Hampton Beach this time, though)

And we’ll have our road trip, in the fall or next fall, one or the other. We’ll pack the kids up in a rented van, we’ll see the roads, we’ll stop for gas and goodies. We’ll take 95 all the way down. We’ll stop at South of the Border, because I’ve always wanted to go but never have. We’ll see enormous fields of cotton and black eyed susans on the sides of the road. We’ll stay on the beach and then we’ll drive to Disney and we’ll be in that delightful bubble for a blissful week. 

This will happen, it will all happen eventually. This is what I think about to keep myself sane, because things are really hard and really scary right now, but it’s not forever, and in the end, we’re all in this together.

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Can I be blamed if I’m angry?
Can I be saved if I’m barely clinging to hope?
I’m clinging to hope

When I say oh, oh
Rain don’t change the sun
Jealous is the night when the morning comes
But it always comes
(Delta Rae, “Morning Comes”)

 

This Damn Week: A List

  • On Saturday, Isaac got norovirus.
    • We did not know, at the time, that it was norovirus.
    • We thought he just had a cold and had too much mucus in his system and it was just coming out all ends.
    • So we took him to the ER because he couldn’t keep fluids down.
      • He could have been there for two hours so that the Zofran would work and he’d be able to drink again.
      • By hour five, Kyle called me to ask me to bring Isaac’s usual bottle so that he would drink the fluids.
      • So my mom came to put Sam and Carrie to bed while I drove all the way to the hospital.
      • Only for Kyle to call as I was about to turn into the parking lot and say that just kidding, Isaac just drank the whole bottle.
  • Kyle and I were supposed to go on a date Sunday afternoon, but since Isaac had norovirus, that was out.
    • Instead, my dad came over and ate cake, and that was fine.
  • Monday was a holiday, and that was fine.
  • On Tuesday, Kyle worked from home. 
    • Which he does every Tuesday.
    • So when he finished work, he decided to take Sam to our local CVS to get a flu shot.
      • Despite having lost three hours of work to a random power outage halfway through the day.
      • (it was also pouring rain)
      • They were also going to buy groceries.
    • While they were gone, Isaac vomited profusely. 
      • It was impossible to clean.
    • And Sam couldn’t even get his flu shot because the power outage had caused the clinic’s supply to go bad.
  • On Wednesday, things mostly seemed normal, except I wasn’t hungry.
    • But mostly things were okay. 
    • My mother visited for an hour in the afternoon, and I had dinner with the kids.
    • After dinner, the kids started climbing on my lap.
    • I started feeling seasick.
      • Uh oh.
  • After Kyle got home, I barely made it upstairs before I, too, fell victim to the norovirus.
    • Cue six straight hours of running to the toilet every twenty minutes and not being sure which end was exploding.
      • (sorry)
    • And after that, cue the next eighteen straight hours of brutal muscle aches and a low grade fever.
    • Norovirus is a bitch.
  • BUT THAT’S NOT ALL!
    • Kyle and I share a toilet.
    • Sharing a toilet is a good way to pass norovirus from person to person.
    • About twelve hours after I first got sick, guess who also got sick?
      • (it was neither Sam nor Carrie)
  • So now we have two adults sick as can be, zero backup because we’re not inviting people into our plague shack, and three hyperactive children.
    • Child Sam is on break from school and will not stop running and scream singing “DIGGY DIGGY HOLE” all the time.
    • Child Isaac is HUNGRY but he’s also not 100% feeling better so he’s ANGRY because he doesn’t want any of his usual favorite foods and he’s very tired of Pedialyte.
    • Child Carrie is playing with Child Sam all the time at 9000 MPH and scream singing either “INTO THE UNKNOWN” or “BABY SHARK” while running around the living room.
    • My head.
  • Everyone finally seems somewhat recovered today, Saturday.
    • (this after completely losing both Thursday–when Isaac was supposed to have his ABA assessment–and Friday to illness)
  • Kyle and I feel well enough to start cleaning up after our illness.
    • We start a load of laundry.
    • When Kyle goes to switch the laundry, he discovers that the water did not drain.
    • He tries to fix the washing machine.
      • He finds $5 in change!
      • He does not fix the washing machine.
    • We cancel tonight’s D&D session so one of us can go to the laundromat.
  • At bedtime, we’re changing Isaac.
    • He has hives.
      • Wtf?
      • We have not started new foods.
      • We have not used new detergents.
      • He is not on new medicine.
    • So we call the nurse line.
      • Nurse line says that this can happen at the end of a virus and we should give him Benadryl.
      • Cool.
      • We don’t have Benadryl.
    • Everything gets pushed back an hour or so while we hunt down Benadryl and give it to him. 
  • Kyle just now got home with the laundry.
  • It is 10:30 p.m. on a Saturday.
  • I need a vacation.

Two of them

It’s coming, sooner than I want it to, mostly because I feel wholly unprepared.

It, of course, is my life as a stay-at-home mom of two two-year-olds. March 14, the twins turn two, and even though it won’t technically be all that much different from the day before, things are already starting to take a turn for the chaotic.

The biggest preview of things to come happened about two weeks ago. As part of Isaac’s therapy, we’re taking him (or trying to take him) to a parent-and-child group through our local Early Intervention center. I’d tried it before, when the twins were really young, but it hadn’t worked out because being a singular mom hauling around two babies with the exact same needs is… well, it’s rough. 

The twins were, I believe, barely past 5-6 months old at the time, not quite sitting up independently yet, and certainly not in a place yet where I could really settle them down and let them frolic. I mostly just sat on the floor, cross-legged, with the two of them lying in front of me, immobile and baffled by the suddenly crazy world around them. The other parents were chatting back and forth about how their kids were doing–this one had a GI appointment later this week, that one was finally taking a bottle without any struggle–but I could barely pay attention for more than a few seconds because the twins just. Didn’t want to be left alone on the floor. 

I couldn’t do it alone, I realized. Whether it was because of my own sensory issues making classroom settings stressful for me (too. much. talking.) or because having two infants and one parent makes doing things impossible, I couldn’t do it alone. And anyway, we didn’t really need group back then. It was mostly a playgroup for parents to come and talk about their struggles and get support, and while I’ll be the last one to suggest I don’t need support, I prefer the one-on-one kind or else support in chat windows. Face-to-face support is… stressful. 

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But then Isaac got his diagnosis, and one of the recommendations from his doctors was some sort of playgroup. Right now, he’s just old enough for the parent-and-child group, like before, and because Carrie is also in Early Intervention (at least until she stops being a little turd during evaluations and shows people what she can really do), she gets to come along, too. It’s a two hour session, once a week, and because Kyle works, I’ve asked my mom to join me on group days (which is great because half of the other adults there are grandmas as well) because otherwise, I wouldn’t be able to do it. And she’s graciously agreed to join me, and it’s all fun, we expected.

Except. The first day of group, she got a stomach bug, and she got it right as I pulled up to the center.

So I tried it alone again.

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What you first must understand about having twin two-year-olds is that unless a place is easily accessible by stroller, you’re going to have a helluva time getting in. I was recovering from bronchitis at the time (more on that in a second), and I had to haul these two children, neither of whom wanted to be carried, down a couple of flights of stairs to the classroom. I don’t blame the EI center for this, since they technically do have access around the back of the building, and they have an elevator as well (“elevator” in this instance meaning “manager’s lift from back when it was an industrial building”). I mostly blame my thought process of “well, we’ll just go in the front door because that’s less of a hike than walking around back.”

So twin two-year-olds down two flights of stairs, both of them wanting to get down but also not wanting to let go of me, and there’s no space on the stairs for any of us whatsoever. We finally got down to the classroom in time for the end of free play, and the twins had their first encounter with washing their hands in a weird place. By this age, Sam had been in daycare for about a year, so he was an old pro at washing his hands in strange places, but the twins have mostly just seen the inside of our downstairs bathroom and me coming after them with wipes. Carrie wanted nothing to do with the process and screamed and cried and refused to get her hands wet. Isaac, on the other hand, kept climbing up the step stool to play with the faucet again and again and again. 

Now here, one might ask, “well, why didn’t you pull him away?” or “why didn’t the teacher pull him away?” and I might say, “because my hands were full with Carrie, who was melting down utterly; and because the teacher had half a dozen other children plus the classroom schedule to take care of, as this is a group that has a more one-on-one dynamic.” 

Yes, Carrie was melting down, though Isaac recovered quickly from being prevented from making his dreams of flooding the room come true. He spotted a peg board like one we have at home and set to work making the tallest possible tower of pegs. Carrie, once she’d adopted a pouting acceptance of her fate, dutifully marched around the room to see what toys she could see, often coming over to sit on my lap and cry against my shoulder some more at the misery of it all. 

They both finally shuffled over to the play kitchen, which pleased me–they love watching me cook, they love watching cooking videos, and now they were getting a chance to try it out for themselves. Isaac hummed and babbled to himself as he tossed plastic ingredients into a pot (carrot, fried egg, doughnut?), and Carrie became… oddly enamored of a plastic spatula and a plastic watermelon slice. For a few minutes, they were very happy. 

I, too, was happy–happy enough to play with the Little People someone had scattered on the floor by my feet. I set up a summoning circle, and the Little People called forth the Little People Pope in his Little People Popemobile, and it was great.

And then, it was time to stop free play. 

The other kids were, I think, seasoned pros about this, or at least more of seasoned pros than either Isaac or Carrie, whose days at home have all the structure absurdist literature, which is to say little to none. Their switches between activities at home are fluid, and I don’t make them put away their toys before settling them in their high chairs or bringing them up to bed because I am tired and I don’t want screaming. At group, however, once free play is over, the free play toys need to be put away. Isaac was fine with this (hilariously, my autistic kid had the least issue with change) because he loves cleaning up, and seeing that these New Toys also had a Place basically made his life. 

But Carrie.

Dear, sweet Carrie. Carrie, who has developed an almost obsession with me lately, where even if I just step outside the room to go to the toilet, it sends her into a meltdown. Carrie did not want to give up her spatula and watermelon. 

I’m pretty sure I did it wrong. I asked nicely for the toys and, when she wouldn’t give them up, pried them from her vice like grip, which resulted in another tantrum. And I say tantrum, rather than meltdown, because there is a difference between the two. She wasn’t overtired or overstimulated, she just wanted to hold onto those two toys in particular and having to give them up made her Very Angry. It didn’t matter that it was circle time, and circle time meant songs. It only mattered that fuck you people, I want my spatula and my watermelon. 

And all the while, Isaac was running around the rest of the room. He discovered the trash can, which the teacher promised would be put away the next time we came (but for that time, it was not put away, and Isaac liked how the lid flipped around). 

I tried, I tried so hard to wrangle them both to the circle, but I could only hold onto one at a time. When they’re calm, I can do both. They rest their heads on my shoulders and conform to my body, and we’re happy. But Carrie was angry, and Isaac was excited, and their existence was chaos given form. Letting go of one to catch the other made it worse. Other children in the circle were less than happy to be there, but those other children had a parent apiece to keep them from running amok. Isaac and Carrie just had me. 

(sidenote here: I’m not mad at my mom for not being there; she got sick, and that happens. I’m just recounting how crazy it was and how it’s helped me realize that oh man, am I in over my head)

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Circle time was all about songs, with the kids who’d been there before maturely choosing a song they liked and adorably doing the hand motions. My kids, who had not been there before, either ran around the room like a crazy person (Isaac) or screamed and cried like I was tearing out their toenails one at a time (Carrie). Carrie did pay enough attention, however, to fall in love with the “fishy” song and how it ended with “bubbles… bubbles… bubbles… SPLASH!” I think it may have been the only thing she truly enjoyed about the experience.

After circle time, it was time for snacks, which prompted another ruckus from Carrie because hand washing. Isaac washed his hands once, went to the back of the line and washed his hands again, went to the back of the line and washed his hands again… while Carrie had to be forced to touch the water (she’s not like that at home at all… she’s kind of my little fish) and continued to sob hysterically when she couldn’t grab a bowl of peaches all by herself. 

It felt like I was upending this poor teacher’s entire day by having these two unruly kids. Everyone has a first day in group, I know, and all kids have bad days, but they were out of my control entirely. If I had one calmed down or under control, the other was off in the corner summoning Baphomet from the ninth circle of hell or something. 

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But at least the snack was okay. The other parents sat nicely with their kids who’d been there before, all of them using utensils in some approximation of correctness. My twins have little experience with utensils, since finger foods are just easier when you’ve got two, but Carrie gave it the old college try and ate her peaches in about three seconds flat. Isaac had no interest in peaches and instead dumped the bowl over with glee. They both selected pretzels and goldfish as part of their snack, and they would have done well, except they were next given open cups of water to practice with. 

Like. Okay. I know that I need to get them started on that. I know it’s something I should’ve been doing for a while. They’re almost two. Bottles should be ancient history.

But I remain tired and maybe I don’t want to deal with wet milky clothes every day all the time. 

Carrie gave it a try again, and she got thoroughly soaked, though she got some water in her mouth. Isaac grabbed the cup by the lip, and while I know I should have repositioned his hand and let him try again, all I could think of was how I was about to have two drowned rat children and it was 19 degrees outside.

So I took the cup away.

Undeterred, Isaac took Carrie’s cup and sat there merrily squishing every goldfish and pretzel he could find into it until the teacher finally came and took snacktime away, replacing it with craft time: black construction paper and chalk. 

Isaac ate the chalk, but it’s nontoxic, so whatever.

Carrie actually did a very good job, scribbling and stabbing and giggling all the while, which is probably why her next despair-a-thon started when it was time to give the chalk back in exchange for bubbles. 

I like bubbles time. Everyone likes bubbles time. All of the children calmed down and started laughing and chasing the bubbles. Blowing bubbles is a soothing breathing technique, and I felt some of my stress dissipate. Carrie even managed to blow a bubble of her own and squealed with pure joy when I caught it on the wand for her. 

And then it was time to move on. Free play, circle time, snack, craft, bubbles, and now gross motor play in the gym area two rooms down. The twins aren’t very good at being escorted places while holding hands because… well, a lot of reasons. With Sam, we had one child, so we took him out everywhere by himself, and we could hold his hands, and he got good at it. I took him out alone a lot. When Kat lived with us, she came with me. Taking Sam out was easy at most ages, and it still is; he’s a delight to have at any store, behaving himself quite well in exchange for a trip down the Lego aisle.

But the twins… I’ve been afraid. For good reason. I have two hands, exactly two, and any outing with two children requires more than two hands. You need at least one hand, probably two, for each child. You need hands for the stroller and hands for the diaper bag and hands for the inevitable “NO DON’T TOUCH THAT… oh, sorry, I’ll pay for it, sorry!” Being that I only have two hands, I don’t take the twins out by myself very much yet. I need to, I need to start doing it because how else will they learn? But…

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But. That’s basically the moral of this whole story. Everything is twice as hard with twins, which is why I haven’t been doing any of it, which is why they came to the parent-child group as a hot mess.

Somehow, I wrangled them down the hall and let them free. It was… something. Isaac is bad at following commands and ignored everyone who told him that slides are for sliding, not climbing, but later found a rocking horse and pure joy. Carrie just… up and slapped everyone she met. Hauled off and just, SMACK! Right in the face. I thought I saw it once or twice, turning around from helping Isaac to stop climbing up the slide, buddy, what did I say? but I only really caught it once, as I was bringing Isaac back from something else. I turned around, Carrie was facing this other little boy, and she just smacked him right across the mouth, twice, before heading off to do her own thing. 

“Carrie!” I admonished her, hurrying to find some way to scold her without dropping Isaac. The little boy seemed mostly unfazed, though he did lean against his mother sadly, and I was so embarrassed that I couldn’t bring myself to fess up and apologize. 

And then the twins got stamps on their hands and the group was over. I wrangled them back up the stairs, and right when I thought we were going to be okay, Carrie broke away from me, running past the receptionist’s desk and into a meeting room filled with heavy and dangerous office supplies. I had Isaac on one hip, the diaper bag on the other, my purse slung around my neck, and zero energy. “Carrie!” I cried again, and the receptionist looked concerned while doing nothing. 

I put Isaac down. He dissolved into sobs because I was clearly leaving him to be eaten by wolves. I put the diaper bag down. I put my purse down. I marched into the office after my little escape artist, who giggled merrily until I picked her up and then began screaming. I scooped up the diaper bag. I scooped up the purse. I scooped up the sobbing Isaac. I got us all out to the van, somehow, and got everyone buckled in, somehow, and I sat in my front seat and sobbed. 

It was just so much.

Group is a challenge for me from the start, because group means interacting with strangers, which is not something I do well. It means an unfamiliar environment. It means too much noise. It means new situations and strange schedules, and it means that I’m already parenting on hard mode just by being there. 

But add twins. 

Two little adorable kids, one of whom can’t talk at all yet, the other of whom is an impish diva gremlin child. They’re freaked out because it’s a weird place. They’re freaked out because it’s a weird schedule. They’re freaked out because there’s so much noise and so many people and everything happens so much. 

And congratulations to me, I think I just did parenting on hard mode tournament level. 

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I congratulate myself mostly because they came out in one piece, nobody got seriously hurt, and against every sense of self-preservation I have, we’re going back on Thursday (after missing last week because Isaac had a merciful 100 degree temperature, the exact cut off for “you can’t come to group today”). But man oh man do I feel like I’m shitting the bed on this parenting thing. I need to push them and teach them new things, but group made me realize just how behind I’ve been and just how ill-equipped we are for that sort of thing. Worse, it made me feel utterly incapable of doing… well, anything that involves them. How am I supposed to manage twin two-year-olds on a day-to-day basis if I can’t even keep them from wreaking total havoc in a group environment?

I remind myself that my mom will be there this time (hopefully), and that once Isaac’s ABA therapy starts, his therapist will be there. That it’s neither a race nor a competition. That they’re happy, healthy, and perfectly fine children, technically around where they’re supposed to be. 

But I also can’t help but look at it as a test where I didn’t exactly fail, but I won’t be getting a lot of praise, either. 

It also caused my bronchitis to relapse, and now I’ve got a nebulizer, so that’s fun.

I don’t know. I shouldn’t be in my feelings about this, I shouldn’t still be kicking myself about the whole situation, but I am. I feel like I’m failing them on some level that they’re nearly two and don’t have these basic things going on–the ability to transition from one activity to another without falling apart, the ability to drink out of a cup without a lid, the ability to not slap the living daylights out of other children who happen to exist. They’ve not had a lot of opportunities to practice those things, and I know that’s largely my fault, and it’s something I need to work on going forward, but I feel shitty that I haven’t… I don’t know, I guess been doing more to this point.

I don’t know. I don’t know. Two year old twins are a lot.